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Joyce Lee, MD, MPH
Nightscout Community
@NightscoutProj @joyclee
#wearenotwaiting
Nightscout:
A Community Designing
the Future of Healthcare
Social Media Editor,
JAMA Pediatrics
Healthdesignby.us
@joyclee
75%
of children fail to achieve
recommended blood sugar
goals in Type 1 Diabetes
A Community Designing the Future
Healthcare: “Fax us your numbers!”
Kid: “Mom, what’s a fax? Is it
compatible with Snapchat?”
A Community Designing the Future
A Community Designing the Future
Some people wonder why almost
no one uploads their pump data…
I think I know why: because
getting it to work can be like
CRAWLING. THROUGH.
BROKEN. GLASS.
@HowardLook
A Community Designing the Future
75%
of providers/healthcare
systems fail to help
children achieve
recommended blood sugar
goals in Type 1 Diabetes
Patient problems
are really
design problems
Joyce Lee, MD
Medical Designer
Fix the design,
and it’s no longer the
patient’s problem
Joyce Lee, MD
Medical Designer
Let patients and caregivers
design, and they will
fix the problem!
The Nightscout
Project
Patient as
expert
maker
collaborator
#thefutureofdiabetestechnology
Patient as
expert
http://bit.ly/10IUyph
A Community Designing the Future
A Community Designing the Future
Patient as
maker
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
Patient as
collaborator
“We continued to work on our apps
and tools, more folks on twitter began
to notice – and it became very clear
that people really wanted this tool. It
was life changing for us, and other
parent’s immediately saw the value,
the hope for a less complex, safer,
healthier life it can bring.”
“Freedom!”
A Community Designing the Future
“We continued to work on our apps
and tools, more folks on twitter began
to notice – and it became very clear
that people really wanted this tool. It
was life changing for us, and other
parent’s immediately saw the value,
the hope for a less complex, safer,
healthier life it can bring.”
“Freedom!”
-John Costik
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
12,500+ members
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
A Community Designing the Future
#diyps
OpenAPS.org
A Community Designing the Future
Upcoming Nightscout Studies
•  Descriptive Survey
•  Ethnography (Health communities/
Makers)
•  Facebook Mining
•  Patient-driven Research Network?
Take the survey!
www.nightscoutsurvey.info
# of completed surveys
1 day after release!
MD to Patient
Passive
Solitary
Closed
Patient to Patient
Active
Collaborative
Open
THANK YOU
The CGM in the Cloud community
Emily Hirschfeld, Preciosa Choi,
Weston Nordgren, Ben West,
Dana Lewis, Scott Leibrand, Jason Adams,
John Costik, James Wedding,
Nightscout Foundation
Twitter: @NightscoutProj
FB: CGM in the Cloud
#wearenotwaiting

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