1. #hpm
Healthcare Hashtag Twitter Transcript
From: Wed May 11 18:00:00 PDT 2011
To: Wed May 11 19:00:00 PDT 2011
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Learn more about #hpm at The Healthcare Hashtag Project
ctsinclair Few days left: #Hospice is trouncing Electronic health records 68 to 32% in Modern
Healthcare's (fake) tourney http://hpm.md/jytCpf #hpm
Wed May 11 18:00:20 PDT 2011
MeredithGould @DNRstories Ugh...feel better. Migraine headaches bite. #hpm
Wed May 11 18:00:21 PDT 2011
MatthewsMichele @DNRstories sorry to hear that; Hope you feel better! You'll join us next week then?
#hpm
Wed May 11 18:00:44 PDT 2011
hollyby For the next hour, I'm tweeting from the #Hospice and #Palliative Medicine Tweetchat.
Learn how http://bit.ly/dcA3ic via @ctsinclair #hpm
Wed May 11 18:00:47 PDT 2011
hollyby Welcome to the #Hospice and #Palliative Medicine Tweetchat! Let’s get started with
some introductions. I'm hosting tonight. #hpm
Wed May 11 18:01:36 PDT 2011
aliciabloom time for the #hospice and #palliative medicine tweetchat! #hpm
Wed May 11 18:01:40 PDT 2011
MeredithGould <--sociologist, keen on communicating health & building community; author; writer;
gadfly. Also tweet as @HealthFaith #hpm
Wed May 11 18:02:12 PDT 2011
drpippa <---family doc, HPM doc, tweeting life and work from Boston. #hpm
Wed May 11 18:02:49 PDT 2011
ctsinclair Christian Sinclair, palliative MD @KCHospice, editor @Pallimed, CEO @KLXmedia,
fan of sports not liked in US (soccer, hockey, #F1) #hpm
Wed May 11 18:03:28 PDT 2011
2. hollyby Hello! Holly Yang, HPM doc from @SanDiegoHospice. All tweets are my own. #hpm
Wed May 11 18:03:38 PDT 2011
ctsinclair RT @MeredithGould: Hey friends, will be chatting about hospice & palliative medicine
for the next hr. All welcome to follow hashtag--> #hpm
Wed May 11 18:04:14 PDT 2011
MeredithGould @ctsinclair Ooo! I love soccer & hockey! #hpm
Wed May 11 18:04:30 PDT 2011
ctsinclair Hey @MeredithGould, @HollyBy, @Drpippa #hpm
Wed May 11 18:04:39 PDT 2011
drpippa @ctsinclair @MeredithGould @HollyBy @Drpippa hey yourself! #hpm
Wed May 11 18:05:09 PDT 2011
ctsinclair Might be typing slow tonight. My right thumb needs to be soaked from a pus draining
wound. Dumb bike. #hpm
Wed May 11 18:05:15 PDT 2011
aliciabloom <-- hpm msw, lsw & clinical educator @VITASHospice in Philadelphia #hpm
Wed May 11 18:05:28 PDT 2011
hollyby Welcome @SheyontheBay @aliciabloom @MeredithGould @drpippa @ctsinclair
@MatthewsMichele ! Great to see you! #hpm
Wed May 11 18:05:31 PDT 2011
hollyby @ctsinclair Gross. Hope you feel better. #hpm
Wed May 11 18:05:48 PDT 2011
ctsinclair @MedreditGould Are you going to Rochester in the fall? #hpm
Wed May 11 18:05:54 PDT 2011
MeredithGould Slipping in a mention that tomorrow is Fibromyalgia Awareness Day. #FibroAware
#hpm
Wed May 11 18:06:03 PDT 2011
MatthewsMichele <--- Dir. of media and public policy comm @KLXMedia, #hpm/ #healthpolicy and
#socialmedia enthusiast out of DC #hpm
Wed May 11 18:06:12 PDT 2011
PracticalWisdom Lisa, Speaker, Trainer, Presentation Designer, Rascal. Really glad to be with
wonderful, Smart #HPM Group. #HPM
Wed May 11 18:06:28 PDT 2011
MeredithGould @ctsinclair Yes! You're going to make it, yes?? #hpm
Wed May 11 18:06:34 PDT 2011
3. ctsinclair I just want to say I really like @Aliciabloom and her tweets. Everyone else's too, but
alicia always seems to be on when I am looking. #hpm
Wed May 11 18:06:34 PDT 2011
MatthewsMichele Took the words right out of mouth! RT @hollyby: @ctsinclair Gross. Hope you feel
better. #hpm
Wed May 11 18:06:42 PDT 2011
hollyby @DNRstories See you next week! Hope you feel better. #hpm
Wed May 11 18:07:09 PDT 2011
PracticalWisdom I'll be learning and chatting with #HPM for the next hour. #HPM
Wed May 11 18:07:15 PDT 2011
hollyby @PracticalWisdom Hi Lisa! #hpm
Wed May 11 18:07:26 PDT 2011
ctsinclair @hollyby I forgot HPM docs usually are not fond of gross out medical stuff. My ER
wife on the other hand makes me quesy with stories #hpm
Wed May 11 18:07:35 PDT 2011
SheyontheBay @MeredithGould @ctsinclair That's how rumors start.... #hpm
Wed May 11 18:07:38 PDT 2011
ePatientDave RT @MeredithGould: Slipping in a mention that tomorrow is Fibromyalgia Awareness
Day. #FibroAware #hpm
Wed May 11 18:07:49 PDT 2011
PracticalWisdom Holly Hi, looking forward to your topics tonight. Thanks!RT @hollyby:
@PracticalWisdom Hi Lisa! #HPM
Wed May 11 18:08:06 PDT 2011
MeredithGould @ctsinclair Who doesn't like gross out medical stuff?? LOVE it! As @drsnit would
add: *confetti* #hpm
Wed May 11 18:08:38 PDT 2011
ctsinclair @MeredithGould Will be there. Only Monday though, debating if I can stay longer.
(Conference BTW @Sheyonthebay) #hpm
Wed May 11 18:08:48 PDT 2011
PracticalWisdom Ying/Yang=G8 RT @ctsinclair: @hollyby I forgot HPM MD usually are not fond gross
out med. stuff. ER wife makes me quesy with stories #HPM
Wed May 11 18:09:01 PDT 2011
Kaviraj2 RT @ctsinclair: RT @MeredithGould: Hey friends, will be chatting about hospice &
palliative medicine for the next hr. All welcome to follow hashtag--> #hpm
Wed May 11 18:09:04 PDT 2011
Kaviraj2 RT @ctsinclair: Christian Sinclair, palliative MD @KCHospice, editor @Pallimed,
CEO @KLXmedia, fan of sports not liked in US (soccer, hockey, #F1) #hpm
Wed May 11 18:09:08 PDT 2011
4. Wed May 11 18:09:08 PDT 2011
EldrcareConsult I'll be learning and chatting with #HPM for the next hour. #HPM
Wed May 11 18:09:25 PDT 2011
ctsinclair @ePatientDave You are welcome to join us in #HPM tweetchat! #hpm
Wed May 11 18:09:26 PDT 2011
renee_berry Hi everyone! ---rb here, love this community, passionate about early palliative care,
hospice volunteerism & advance care planning #hpm
Wed May 11 18:09:26 PDT 2011
chemosabe hey y'all, keeping an eye on it today, but mostly stalking... #hpm
Wed May 11 18:09:34 PDT 2011
Kaviraj2 RT @ctsinclair: Few days left: #Hospice is trouncing Electronic health records 68 to
32% in Modern Healthcare's (fake) tourney http://hpm.md/jytCpf #hpm
Wed May 11 18:09:44 PDT 2011
PracticalWisdom Look who is here. Long time no chat? @ePatientDave #HPM
Wed May 11 18:09:50 PDT 2011
SheyontheBay @ctsinclair @hollyby those gross ER stories shared by the parentsare great ways to
teach your children by osmosis, ie,STDs and condoms #hpm
Wed May 11 18:10:00 PDT 2011
drpippa @renee_berry hello! has been so long! #hpm
Wed May 11 18:10:10 PDT 2011
hollyby @Kaviraj2 @renee_berry @chemosabe @EldrcareConsult Welcome! #hpm
Wed May 11 18:10:16 PDT 2011
PracticalWisdom @chemosabe: So glad you R Here~from one chat to another right? #HPM
Wed May 11 18:10:17 PDT 2011
hollyby Moving to Topic #1 soon… #hpm
Wed May 11 18:10:33 PDT 2011
MeredithGould How cool am I? I finally get to meet -->@renee_berry in a couple of weeks! #hpm
Wed May 11 18:10:56 PDT 2011
chemosabe @PracticalWisdom thanks Lisa quite right, checked out of #ivchat and here I am
#hpm
Wed May 11 18:11:01 PDT 2011
renee_berry :) yes! happy to see you!! RT @drpippa: @renee_berry hello! has been so long! #hpm
Wed May 11 18:11:02 PDT 2011
5. EldrcareConsult Hey there everyone....Shon from Knoxville here....serving seniors and all of
humanity..... #hpm
Wed May 11 18:11:03 PDT 2011
PracticalWisdom @hollyby @Kaviraj2 @renee_berry @chemosabe @EldrcareConsult G8 Crew on the
Ship tonight. Clear sailing ahead!! #HPM
Wed May 11 18:11:04 PDT 2011
MatthewsMichele Just FYI...Lurking (mostly) is my beat tonight too. RT @chemosabe: hey yall, keeping
an eye on it today, but mostly stalking... #hpm
Wed May 11 18:11:30 PDT 2011
hollyby @SheyontheBay @ctsinclair Somehow scare tactics don't seem to work. :) #hpm
Wed May 11 18:11:30 PDT 2011
jessicajohanna Hi! Work @klxmedia. First tweetchat, may be lurking :) #hpm
Wed May 11 18:11:31 PDT 2011
renee_berry yes & @jessicajohanna & matthewsmichele! RT @MeredithGould: How cool am I? I
finally get to meet -->@renee_berry in a couple of weeks! #hpm
Wed May 11 18:11:32 PDT 2011
PracticalWisdom @EldrcareConsult Our Southern Gentleman. #HPM
Wed May 11 18:11:54 PDT 2011
ctsinclair Hey @Chemosabe I always tell people about how you asked ?'s from our tweets at
@AAHPM conference in Feb from 1/2 way around the world #hpm
Wed May 11 18:11:55 PDT 2011
hollyby Pre-T1: HPM providers (and others) think a lot about how our care impacts patients
and families. #hpm
Wed May 11 18:12:06 PDT 2011
drpippa Welcome! RT @jessicajohanna: Hi! Work @klxmedia. First tweetchat, may be lurking
:) #hpm
Wed May 11 18:12:19 PDT 2011
hollyby @jessicajohanna Welcome! #hpm
Wed May 11 18:12:20 PDT 2011
PracticalWisdom Welcome! How exciting. RT @jessicajohanna: Hi! Work @klxmedia. First tweetchat,
may be lurking :) #HPM
Wed May 11 18:12:20 PDT 2011
MatthewsMichele @jessicajohanna good to see you here!! :) WELCOME! #hpm
Wed May 11 18:12:26 PDT 2011
ctsinclair @EldrcareConsult Hey Shon. I didn't realize your name was spelled so uniquely.
#hpm
6. #hpm
Wed May 11 18:12:26 PDT 2011
MeredithGould RT @hollyby: Pre-T1: HPM providers (and others) think a lot about how our care
impacts patients and families. #hpm
Wed May 11 18:12:34 PDT 2011
chemosabe @ctsinclair thanks Christian, nest best thing to being there! #hpm
Wed May 11 18:12:43 PDT 2011
renee_berry RT @hollyby Pre-T1: HPM providers (& others) think a lot about how our care impacts
patients & families #hpm
Wed May 11 18:12:48 PDT 2011
EldrcareConsult @PracticalWisdom oh stop (ya'll) #hpm
Wed May 11 18:12:48 PDT 2011
bentleystewart RT @hollyby: Pre-T1: HPM providers (and others) think a lot about how our care
impacts patients and families. #hpm
Wed May 11 18:12:50 PDT 2011
chemosabe anyone going to European Pallimed conference next week? #hpm
Wed May 11 18:13:12 PDT 2011
hollyby T1: I’ve been thinking abt patient/family feedback to docs/teams. What info from
patients would be useful to make care better? #hpm
Wed May 11 18:13:20 PDT 2011
hollyby @BentleyStewart Hi there! #hpm
Wed May 11 18:13:36 PDT 2011
aliciabloom @ctsinclair wow...thank you so much! i'm thrilled to have found the #hpm community.
love tweeting & learning!
Wed May 11 18:13:49 PDT 2011
MeredithGould RT @hollyby: T1: What info from patients would be useful to make care better? #hpm
Wed May 11 18:13:51 PDT 2011
PracticalWisdom If you send the Jet! I'll pitch in for Gas!RT @chemosabe: anyone going to European
Pallimed conference next week? #HPM
Wed May 11 18:13:57 PDT 2011
renee_berry RT @hollyby: T1: I’ve been thinking abt patient/family feedback to docs/teams. What
info from patients would be useful to make care better? #hpm
Wed May 11 18:14:00 PDT 2011
EldrcareConsult @hollyby T-1 A good view of the family dynamics..... #hpm
Wed May 11 18:14:13 PDT 2011
Pallimed Would love for any @Pallimed Twitter followers to join us right now in #HPM
7. Pallimed
Tweetchat. http://tweetchat.com/room/hpm #hospice
Wed May 11 18:14:17 PDT 2011
PracticalWisdom 1 of the best!RT @aliciabloom: @ctsinclair wow...thank you ! im thrilled to have found
the #hpm community. love tweeting & learning! #HPM
Wed May 11 18:14:40 PDT 2011
renee_berry T1 Understanding that simply... #palliative care is comfort focused care (& that
hospice is not one thing, but many organizations) #hpm
Wed May 11 18:14:48 PDT 2011
Pallimed RT @hollyby: T1: I’ve been thinking abt patient/family feedback to docs/teams. What
info from pts would be useful to make care better? #hpm
Wed May 11 18:14:55 PDT 2011
hollyby @chemosabe I can't go, but a poster and a presentation will be there. Look for
@FrankDFerris #hpm
Wed May 11 18:15:10 PDT 2011
MatthewsMichele RT @EldrcareConsult: @hollyby T-1 A good view of the family dynamics..... #hpm
Wed May 11 18:15:51 PDT 2011
ctsinclair It seems to me in times of stress any help is appreciated, so average care might be
seen as outstanding. Need critical feedback. #hpm
Wed May 11 18:15:51 PDT 2011
MeredithGould T1 Families should be prepared & able to give docs/team info about how the patient
communicates: auditory? visual? kinesthetic? #hpm
Wed May 11 18:15:52 PDT 2011
chemosabe Oh I'm not going but the director of our Pall Care Service is #hpm
Wed May 11 18:16:03 PDT 2011
renee_berry T1 Listen to patient & family goals of care, before anything else #hpm
Wed May 11 18:16:12 PDT 2011
PracticalWisdom T1: Respect 4 all Health Care providers. Each is an important piece to build a solid
foundation. PT Satisfaction can be impacted + or - #HPM
Wed May 11 18:16:25 PDT 2011
aliciabloom just today, a family said that the doctors often just "come in, talk at us, & leave." they
were so grateful to have a dialogue & ask ? #hpm
Wed May 11 18:16:51 PDT 2011
hollyby Example: I got a survey from my doc's office. Survey questions are not always helpful
to improve care, but what questions would be? #hpm
Wed May 11 18:16:58 PDT 2011
MatthewsMichele agree! T1 Families should be prepared & able to give docs/team info about how the
patient communicates via @MeredithGould #hpm
Wed May 11 18:17:23 PDT 2011
8. hollyby RT @ctsinclair: ... in times of stress any help is appreciated, so avg care might be
seen as outstanding. Need critical feedback. #hpm
Wed May 11 18:17:26 PDT 2011
MeredithGould T1 Thought the question was what should families provide for providers? Did I get
this wrong? #hpm
Wed May 11 18:17:27 PDT 2011
renee_berry RT @hollyby: Example: I got a survey from my doc's office. Survey questions are not
always helpful to improve care, but what questions would be? #hpm
Wed May 11 18:17:32 PDT 2011
hollyby @MeredithGould You are spot on. #hpm
Wed May 11 18:17:50 PDT 2011
ctsinclair T1: hearing 'you are all angels' frequently can lead to poor self-analysis of skills,
might be a weakness of feedback to #hospice staff #hpm
Wed May 11 18:17:51 PDT 2011
hillaryboucher @PracticalWisdom what is #hpm ?
Wed May 11 18:17:56 PDT 2011
EldrcareConsult @renee_berry That is a great point....LISTEN #hpm
Wed May 11 18:18:11 PDT 2011
PracticalWisdom @hollyby: Holly are the questions open ended or not. Need Specific Feedback in
order to Feed Forward. #HPM
Wed May 11 18:18:13 PDT 2011
renee_berry @hollyby @ctsinclair that is such a crucial aspect to understand, #hospice CEO's
please see this comment... #hpm
Wed May 11 18:18:24 PDT 2011
renee_berry RT @hollyby: RT @ctsinclair: ... in times of stress any help is appreciated, so avg
care might be seen as outstanding. Need critical feedback. #hpm
Wed May 11 18:18:30 PDT 2011
ctsinclair @hollyby I find many surveys about medical care have to deal with the
delivery/mechanics, not necessarily deliver/humanity #hpm
Wed May 11 18:18:38 PDT 2011
drpippa T1 - I want to hear whether they understand/agree with/are comfortable with the plan
of care. particularly in crisis. #hpm
Wed May 11 18:18:49 PDT 2011
MeredithGould T1 Families should be prepared & able to provide info about the patient's spiritual
perspective, religious practices, faith & beliefs #hpm
Wed May 11 18:18:50 PDT 2011
PracticalWisdom @hillaryboucher Hospice and Palliative Medicine. Great group. Good to see you.
#HPM
9. Wed May 11 18:19:01 PDT 2011
chemosabe T1 reponsiveness of staff 2 admit requirements. availablitiy of allied health staff. time
to spend with client & family non-clinically #hpm
Wed May 11 18:19:19 PDT 2011
renee_berry agree RT @EldrcareConsult @renee_berry That is a great point....LISTEN #hpm
Wed May 11 18:19:38 PDT 2011
MeredithGould T1 Let docs/teams know if there are estranged family members who might be
brought back into conversation/relationship at this point. #hpm
Wed May 11 18:19:45 PDT 2011
jessicajohanna @aliciabloom it's rare. though today my doctor asked me about my job, hobbies and
love life #hpm
Wed May 11 18:19:54 PDT 2011
bgood64 RT @MeredithGould: Slipping in a mention that tomorrow is Fibromyalgia Awareness
Day. #FibroAware #hpm
Wed May 11 18:19:58 PDT 2011
LVADone RT @ctsinclair: It seems to me in times of stress any help is appreciated, so average
care might be seen as outstanding. Need critical feedback. #hpm
Wed May 11 18:20:02 PDT 2011
ctsinclair On the flipside, HPM staff can often be criticized heavily by pts/families b/c of high
emotional stress, not b/c of poor skills #hpm
Wed May 11 18:20:17 PDT 2011
renee_berry @drpippa that is so important, so many families I think are not prepared to simply
say what they think or are feeling #hpm
Wed May 11 18:20:21 PDT 2011
renee_berry RT @drpippa: T1 - I want to hear whether they understand/agree with/are comfortable
with the plan of care. particularly in crisis. #hpm
Wed May 11 18:20:27 PDT 2011
EldrcareConsult RT @MeredithGould: estranged family members who might be brought back into
conversation/relationship at this point. EXACTLY! #hpm
Wed May 11 18:20:43 PDT 2011
drpippa I also want to hear about the patient/family before the illness. Helps with
goals/plans/preserving dignity and humanity. #hpm
Wed May 11 18:20:59 PDT 2011
Pallimed RT @MeredithGould: T1 Let teams know if estranged family members who might be
brought back into conversation/relationship #hpm
Wed May 11 18:21:03 PDT 2011
MatthewsMichele t-1. patient general temperament, mood, the way they prefer to communicate...things
that are intuitive to family members... #hpm
Wed May 11 18:21:12 PDT 2011
10. hollyby RT @ctsinclair: On the flipside, HPM staff can often be criticized heavily by
pts/families b/c of high stress, not b/c of poor skills #hpm
Wed May 11 18:21:13 PDT 2011
PracticalWisdom Might be in Shock RT @renee_berry: @drpippa so many families I think R not
prepared e simply say what they think or are feeling #HPM
Wed May 11 18:21:25 PDT 2011
SheyontheBay RT @drpippa: T1 - I want to hear whether they understand/agree with/are comfortable
with the plan of care. particularly in crisis. #hpm
Wed May 11 18:21:41 PDT 2011
ctsinclair @MeredithGould This is such a touchy area. I often will ask about other family who
cannot be present. Can be a touchy area. #hpm
Wed May 11 18:21:43 PDT 2011
ctsinclair @MeredithGould Sorry my record player skipped. My record player skipped! ;-) #hpm
Wed May 11 18:22:08 PDT 2011
MeredithGould @ctsinclair Very very touchy area, which is why chaplains should be involved & on the
team. #hpm
Wed May 11 18:22:13 PDT 2011
EldrcareConsult RT @PracticalWisdom: Might be in Shock Good point Lisa..... #hpm
Wed May 11 18:22:23 PDT 2011
MeredithGould @ctsinclair s'ok s'ok #hpm
Wed May 11 18:22:24 PDT 2011
Pallimed RT @drpippa: T1 - I want to hear whether they understand/agree with/are comfortable
with the plan of care. particularly in crisis. #hpm
Wed May 11 18:22:29 PDT 2011
jessicajohanna RT @drpippa: I also want to hear about the patient/family before the illness. Helps
with goals/plans/preserving dignity and humanity. #hpm
Wed May 11 18:22:39 PDT 2011
aliciabloom the patient/family narrative before & throughout illness is helpful-- builds rapport,
provides insight into values. #hpm
Wed May 11 18:22:44 PDT 2011
PracticalWisdom @hollyby @ctsinclair: When people really feel they are listened to the scores many
times go up. Think Social Workers/Clergy can help #HPM
Wed May 11 18:22:49 PDT 2011
PracticalWisdom RT @aliciabloom: the patient/family narrative before & throughout illness is helpful--
builds rapport, provides insight into values. #HPM
Wed May 11 18:23:03 PDT 2011
MeredithGould RT @drpippa: I also want to hear about the patient/family before the illness. Helps
11. MeredithGould
with goals/plans/preserving dignity and humanity. #hpm
Wed May 11 18:23:07 PDT 2011
drpippa RT @aliciabloom: the patient/family narrative before & throughout illness is helpful--
builds rapport, provides insight into values. #hpm
Wed May 11 18:23:09 PDT 2011
hollyby Wonderful! Getting two things from this 1) quality improvement help from pts, 2)
questions to ask pts to ensure complete picture. #hpm
Wed May 11 18:23:10 PDT 2011
LVADone “@HPHHospice: Nursing encompasses an art, a humanistic orientation, a feeling for
the value of the individual... http://t.co/tUdDd49” #hpm
Wed May 11 18:23:11 PDT 2011
EldrcareConsult @ctsinclair Its very touchy...hardest conversation I have to have with my
families....who to/who not to include in the decisions #hpm
Wed May 11 18:23:19 PDT 2011
ctsinclair Interesting that many medical providers choose to survey AFTER care is delivered.
Not always during. #hpm
Wed May 11 18:23:25 PDT 2011
MatthewsMichele @ctsinclair @MeredithGould Very touchy! Caused my fam to close ranks & not open
up as much to docs when our matriarch was ill #hpm
Wed May 11 18:23:29 PDT 2011
hollyby RT @ctsinclair: Interesting that many medical providers choose to survey AFTER
care is delivered. Not always during. #hpm
Wed May 11 18:23:43 PDT 2011
renee_berry RT @drpippa: I also want to hear about the patient/family before the illness. Helps
with goals/plans/preserving dignity and humanity. #hpm
Wed May 11 18:23:45 PDT 2011
MatthewsMichele RT @ctsinclair: Interesting that many medical providers choose to survey AFTER
care is delivered. Not always during. #hpm
Wed May 11 18:23:46 PDT 2011
SheyontheBay often pts/family have difficulty HEARing in crisis, understand also difficult to articulate
values and goals without gentle guidance #hpm
Wed May 11 18:23:46 PDT 2011
PracticalWisdom RT @jessicajohanna: RT @drpippa: want 2 hear re: patient/family b4 illness. Helps
with goals/plans/preserving dignity and humanity. #HPM
Wed May 11 18:23:49 PDT 2011
LVADone RT @ctsinclair: On the flipside, HPM staff can often be criticized heavily by
pts/families b/c of high emotional stress, not b/c of poor skills #hpm
Wed May 11 18:24:00 PDT 2011
renee_berry RT @aliciabloom: the patient/family narrative before & throughout illness is helpful--
builds rapport, provides insight into values. #hpm
12. builds rapport, provides insight into values. #hpm
Wed May 11 18:24:01 PDT 2011
MatthewsMichele @ctsinclair seems counter intuitive doesnt it? #hpm
Wed May 11 18:24:16 PDT 2011
ctsinclair @MatthewsMichele @MeredithGould Yes i have seen the discussion of 'estranged
family' alienate communication ability #hpm
Wed May 11 18:24:20 PDT 2011
chemosabe @ctsinclair we do during care...but my client base is not post terminal event! #hpm
Wed May 11 18:24:24 PDT 2011
MeredithGould Touchy subjects: all the more reason to Have the Talk! #hpm
Wed May 11 18:24:29 PDT 2011
PracticalWisdom RT @SheyontheBay: often pts/family have dif. HEARing crisis, understand also
difficult to articulate values/goals without gentle guid #HPM
Wed May 11 18:24:37 PDT 2011
drpippa RT @MeredithGould: Touchy subjects: all the more reason to Have the Talk! #hpm
Wed May 11 18:24:52 PDT 2011
EldrcareConsult RT @MeredithGould: Touchy subjects: all the more reason to Have the Talk! Yep!
#hpm
Wed May 11 18:24:57 PDT 2011
ctsinclair @MatthewsMichele Patients and families don't take lessons on how to communicate
best. Many HC profs dont either though... #hpm
Wed May 11 18:25:00 PDT 2011
MatthewsMichele YES! RT @MeredithGould: Touchy subjects: all the more reason to Have the Talk!
#hpm
Wed May 11 18:25:02 PDT 2011
renee_berry always yes on advance care planning! RT @MeredithGould: Touchy subjects: all the
more reason to #HaveTheaTalk! #hpm
Wed May 11 18:25:13 PDT 2011
PracticalWisdom @ctsinclair @MatthewsMichele @MeredithGould Families are complex and now
often live many miles away #HPM
Wed May 11 18:25:17 PDT 2011
aliciabloom "@ctsinclair: Interesting that many medical providers choose to survey AFTER care is
delivered. Not always during." puzzling, really. #hpm
Wed May 11 18:25:19 PDT 2011
MeredithGould @ctsinclair @MatthewsMichele Ok, so do NOT say: "Who does your loved one
despise who should nevertheless be here?" #hpm
Wed May 11 18:25:34 PDT 2011
@hollyby I had plans to lurk but your T1 has drawn me in! #hpm
13. @hollyby I had plans to lurk but your T1 has drawn me in! #hpm
Wed May 11 18:25:38 PDT 2011
MatthewsMichele
mojonimbus RT @aliciabloom: "@ctsinclair: Interesting that many medical providers choose to
survey AFTER care is delivered. Not always during." puzzling, really. #hpm
Wed May 11 18:25:44 PDT 2011
ctsinclair Clarify last statement,not to say that patients and families should improve or change
their comm styles, just that we need to adjust #hpm
Wed May 11 18:25:48 PDT 2011
hollyby We are going to get started with Topic #2 soon… #hpm
Wed May 11 18:26:07 PDT 2011
renee_berry hahaha! great!!!! RT @MatthewsMichele: @hollyby I had plans to lurk but your T1 has
drawn me in! #hpm
Wed May 11 18:26:11 PDT 2011
ctsinclair RT @MatthewsMichele: @hollyby I had plans to lurk but your T1 has drawn me in!
"Like a vaudville lasso....invisible but powerful." #hpm
Wed May 11 18:26:27 PDT 2011
PracticalWisdom T1: It's been my experience that most organization need better survey tools. Filling in
the bubbles is not Valuable feedback #HPM
Wed May 11 18:26:31 PDT 2011
hollyby Agree! RT @PracticalWisdom: T1: ... most organization need better survey tools.
Filling in the bubbles is not Valuable feedback #hpm
Wed May 11 18:27:00 PDT 2011
hollyby Hooray! RT @MatthewsMichele: @hollyby I had plans to lurk but your T1 has drawn
me in! #hpm
Wed May 11 18:27:10 PDT 2011
PracticalWisdom T1: Feedback would be great through the entire process. Are families debriefed by
Pall care teams afterward? #HPM
Wed May 11 18:27:18 PDT 2011
EldrcareConsult RT @PracticalWisdom: Families are complex and now often live many miles away
When the end is near they come out of the woodwork #hpm
Wed May 11 18:27:21 PDT 2011
MatthewsMichele @ctsinclair so true! #hpm
Wed May 11 18:27:27 PDT 2011
MeredithGould @ctsinclair Really...simply knowing how everyone best communicates is big, i.e.,
don't yak endlessly at someone who prefers reading #hpm
Wed May 11 18:27:37 PDT 2011
MeredithGould @MatthewsMichele Yeah, I always mean to lurk and get totally sucked in by this great
group & convo! #hpm
Wed May 11 18:28:06 PDT 2011
14. hollyby Topic #2: How does a life-threatening diagnosis change the management of chronic
disease? For the patient? For the doc/team? #hpm
Wed May 11 18:28:09 PDT 2011
LVADone RT @PracticalWisdom: @ctsinclair @MatthewsMichele @MeredithGould Families
are complex and now often live many miles away #HPM
Wed May 11 18:28:16 PDT 2011
Pallimed RT @PracticalWisdom: T1:my experience that most orgs need better survey tools.
Filling in the bubbles does not = Valuable feedback #hpm
Wed May 11 18:28:31 PDT 2011
renee_berry RT @hollyby: Topic #2: How does a life-threatening diagnosis change the
management of chronic disease? For the patient? For the doc/team? #hpm
Wed May 11 18:28:36 PDT 2011
PracticalWisdom @EldrcareConsult: Hopefully come for good reasons. Have seen when was a clergy
Family Member the Good, Bad and ugly reasons! #HPM
Wed May 11 18:28:37 PDT 2011
MatthewsMichele RT @MeredithGould: @ctsinclair Simply knowing how everyone communicates is
big, i.e., dont yak endlessly at someone who prefers reading #hpm
Wed May 11 18:28:38 PDT 2011
hollyby @PracticalWisdom Not always, and not always well, but that goes for most of
medical care I think #hpm
Wed May 11 18:28:51 PDT 2011
mojonimbus #HPM I think concurrent Feedback could prevent misunderstanding and sone patient
hostility toward health care workers, better care for all
Wed May 11 18:28:59 PDT 2011
MatthewsMichele RT @hollyby: T2: How does a life-threatening diagnosis change the management of
chronic disease? For the patient? For the doc/team? #hpm
Wed May 11 18:29:08 PDT 2011
aliciabloom if we just ask patients & families if they feel heard & have any
questions/concerns/fears, it can open up the lines of communication. #hpm
Wed May 11 18:29:14 PDT 2011
MeredithGould T2 Think it would depend on the chronic disease? #hpm
Wed May 11 18:29:20 PDT 2011
EldrcareConsult RT @PracticalWisdom: Hopefully come for good reasons. Have seen when was a
clergy Family Member the Good, Bad and ugly reasons! Me 2! #hpm
Wed May 11 18:29:25 PDT 2011
ctsinclair T2: may free of some of the medical limitations to control the chronic disease as in
the case of cholesterol or diabetes meds #hpm
Wed May 11 18:29:51 PDT 2011
15. drpippa You assume it does - often it doesn't - that is the problem. How does life-threatening
dx change the mgmt of chronic dis? For the team? #hpm
Wed May 11 18:29:57 PDT 2011
hollyby Example: A diabetic person with new advanced cancer diagnosis. #hpm
Wed May 11 18:30:09 PDT 2011
RossJeanette Hi all joining late t2 goals for chronic illnesses such as Diabetes & high cholesterol
dont need to be tight #HPM
Wed May 11 18:30:14 PDT 2011
PracticalWisdom RT @mojonimbus:#HPM think concurrent Feedback could prev.
misunderstanding/sone pt hostility 2ward health care folks, better care 4 all #HPM
Wed May 11 18:30:34 PDT 2011
hollyby True! RT @drpippa: You assume it does - often it doesnt - that is the problem. #hpm
Wed May 11 18:30:47 PDT 2011
MeredithGould Won't change it at all if the chronic disease is basically unmanageable/untreatable to
begin with (e.g., #fibro) #hpm
Wed May 11 18:30:52 PDT 2011
ctsinclair T2: 1 of most intriguing discussions: how to safely minimize burdensome treatments
for preventing long term complications of disease #hpm
Wed May 11 18:30:57 PDT 2011
MatthewsMichele RT @aliciabloom: if we just ask patients & families if they feel heard & have any
questions/concerns/fears, it can open up the lines of communication. #hpm
Wed May 11 18:30:57 PDT 2011
hollyby @mojonimbus Thanks for joining us! #hpm
Wed May 11 18:31:01 PDT 2011
aliciabloom it should be about the benefits vs burdens of on-going management of the chronic
condition. #hpm
Wed May 11 18:31:11 PDT 2011
MeredithGould RT @aliciabloom: it should be about the benefits vs burdens of on-going
management of the chronic condition. #hpm
Wed May 11 18:31:24 PDT 2011
PracticalWisdom RT @drpippa: You assume it does often it doesnt that's the problem. How does life-
threatening dx change mgmt chronic dis? 4 team? #HPM
Wed May 11 18:31:28 PDT 2011
hollyby RT @aliciabloom: it should be about the benefits vs burdens of on-going
management of the chronic condition. #hpm
Wed May 11 18:31:30 PDT 2011
ctsinclair RT @mojonimbus: concurrent Feedback could prevent misunderstanding, some
hostility toward health care workers-> better care for all #hpm
Wed May 11 18:31:46 PDT 2011
16. Wed May 11 18:31:46 PDT 2011
hollyby @RossJeanette Welcome Jeanette! Glad you could make it! #hpm
Wed May 11 18:31:50 PDT 2011
PracticalWisdom @ctsinclair; Like Feeding Tube Issue? #HPM
Wed May 11 18:32:02 PDT 2011
RossJeanette T2 I like to put patients in the everything you want to eat diet as opposed to the
diabetic renal cardiac... Diet it's about QOL #HPM
Wed May 11 18:32:04 PDT 2011
drpippa must tread lightly - often can be traumatic to patients to stop doing the things we have
spent so much time telling them to do #hpm
Wed May 11 18:32:25 PDT 2011
MeredithGould @RossJeanette Gee, may I be on that diet now??? #HPM
Wed May 11 18:32:31 PDT 2011
renee_berry RT @aliciabloom: it should be about the benefits vs burdens of on-going
management of the chronic condition. #hpm
Wed May 11 18:32:45 PDT 2011
chemosabe T2 shouldn't the focus be the clients decisions about there death and dying and
therefore symptom management that complies with this? #hpm
Wed May 11 18:32:58 PDT 2011
ctsinclair Hi @RossJeanette Hello @mojonimbus glad to meet you! #hpm
Wed May 11 18:32:59 PDT 2011
PracticalWisdom Practical Wis.RT @RossJeanette:T2 I like 2 put pt's everything U want 2 eat diet as
opposed 2 diabetic renal cardiac Diet its about QOL #HPM
Wed May 11 18:33:12 PDT 2011
drpippa absolutely! RT @renee_berry: RT @aliciabloom: it should be about the benefits vs
burdens of on-going mgmt of the chronic condition. #hpm
Wed May 11 18:33:16 PDT 2011
renee_berry @aliciabloom for that particular person, & not necessarily how the family perceives
benefits vs burdens #hpm
Wed May 11 18:33:19 PDT 2011
MeredithGould I'd like to be told to eat massive amounts of high quality dark chocolate & bags of
Cheez Doodles. Oh wait, this isn't about me? #hpm
Wed May 11 18:33:28 PDT 2011
ctsinclair @PracticalWisdom Yes even feeding tube goals can be readdressed, are we aiming
for long term nutrion goals or short term pleaure #hpm
Wed May 11 18:33:45 PDT 2011
MatthewsMichele RT @drpippa: must tread lightly - often can be traumatic to patients to stop doing the
17. MatthewsMichele RT @drpippa: must tread lightly - often can be traumatic to patients to stop doing the
things we have spent so much time telling them to do #hpm
Wed May 11 18:33:46 PDT 2011
PracticalWisdom RT @chemosabe: T2 shouldnt focus b clients dec. re:t their death and dying and
therefore symptom management that complies with this? #HPM
Wed May 11 18:33:53 PDT 2011
renee_berry RT @RossJeanette: T2 I like to put patients in the everything you want to eat diet as
opposed to the diabetic renal cardiac... Diet it's about QOL #HPM
Wed May 11 18:33:58 PDT 2011
ctsinclair @MeredithGould Oh its all about you! Autonomy rules in American Health Care
System. #hpm
Wed May 11 18:34:15 PDT 2011
hollyby Goals of care are always important. RT @chemosabe: T2 shouldnt the focus be the
clients decisions... #hpm
Wed May 11 18:34:51 PDT 2011
ctsinclair RT @drpippa: must tread lightly - can be traumatic to patients to stop doing the
things we have spent so much time telling them to do #hpm
Wed May 11 18:34:56 PDT 2011
EldrcareConsult BRB guys...work calls! #hpm
Wed May 11 18:35:19 PDT 2011
aliciabloom @renee_berry excellent point! although, patients often make treatment decisions for
their families. #hpm
Wed May 11 18:35:29 PDT 2011
renee_berry really?! I hope it does, not sure though.. RT @ctsinclair @MeredithGould Oh its all
about you! Autonomy rules in US Health Care System #hpm
Wed May 11 18:35:32 PDT 2011
hollyby @drpippa Agree that there is a huge emotional component of changing
management of long-standing illness #hpm
Wed May 11 18:36:08 PDT 2011
MeredithGould @renee_berry I think he's goofing on me. How unusual, right? #hpm
Wed May 11 18:36:10 PDT 2011
SheyontheBay @RossJeanette We call that the diet of the dying. I remember a dying chocoholic,
couldnt eat - we swabbed Hershey syrup on her lips #hpm
Wed May 11 18:36:25 PDT 2011
PracticalWisdom Bat Phone must have Rang! Batman to the Rescue! Dedicated to his Clients RT
@EldrcareConsult: BRB guys...work calls! #HPM
Wed May 11 18:36:36 PDT 2011
RossJeanette Agree with @drpippa be careful with readdressing goals and being perceived as
"doing nothing" #HPM
Wed May 11 18:36:59 PDT 2011
18. Wed May 11 18:36:59 PDT 2011
ctsinclair @renee_berry In many ways Autonomy can trump other key ethical principles of
beneficence, Nonmaleficence and fairness. #hpm
Wed May 11 18:37:08 PDT 2011
Pallimed RT @drpippa: must tread lightly - can be traumatic to patients to stop doing the
things we have spent so much time telling them to do #hpm
Wed May 11 18:37:18 PDT 2011
MeredithGould @SheyontheBay Now THAT is compassionate care. Absolutely! But Hershey's? Not
Godiva? #hpm
Wed May 11 18:37:21 PDT 2011
renee_berry RT @ctsinclair: @renee_berry In many ways Autonomy can trump other key ethical
principles of beneficence, Nonmaleficence and fairness. #hpm
Wed May 11 18:37:35 PDT 2011
chemosabe T2 don't know about mx up there, but, separation of client on physician for chronic
illness mx down here v diff. attachment issues #hpm
Wed May 11 18:37:37 PDT 2011
PracticalWisdom Loving RT @SheyontheBay: @RossJeanette Diet of the dying.Remember a dying
chocoholic, couldnt eat we swabbed Hershey syrup on lips #HPM
Wed May 11 18:38:02 PDT 2011
LVADone RT @ctsinclair: @renee_berry In many ways Autonomy can trump other key ethical
principles of beneficence, Nonmaleficence and fairness. #hpm
Wed May 11 18:38:10 PDT 2011
EldrcareConsult @PracticalWisdom Its not the Bat Phone I mind, but these flashing strobe lights kill
me! #hpm I may be a while..................
Wed May 11 18:38:12 PDT 2011
RossJeanette @SheyontheBay I'll have to remember thatchocolaye syrup swab good idea #HPM
Wed May 11 18:38:13 PDT 2011
SheyontheBay @MeredithGould @SheyontheBay Does Godiva make syrup? Too risky to melt chips
#hpm
Wed May 11 18:38:17 PDT 2011
mojonimbus #hpm nice to meet you all too
Wed May 11 18:38:17 PDT 2011
drpippa RT @ctsinclair: @renee_berry In many ways Autonomy can trump other key ethical
principles of beneficence, Nonmaleficence and fairness. #hpm
Wed May 11 18:38:32 PDT 2011
MeredithGould @SheyontheBay I believe Ghiradelli (sp?) makes syrup. #hpm
Wed May 11 18:38:58 PDT 2011
ctsinclair It is interesting many HC professionals feel autonomy overrides often, whereas
19. ctsinclair It is interesting many HC professionals feel autonomy overrides often, whereas
patients often note feeling powerless cc @renee_berry #hpm
Wed May 11 18:38:58 PDT 2011
PracticalWisdom @EldrcareConsult: It's the piercing Alarm Sound that gets me! #HPM
Wed May 11 18:39:04 PDT 2011
renee_berry @ctsinclair agree though think OFTEN the case- autonomy is not possible w/o
informed medical decision making... which I think is often #hpm
Wed May 11 18:39:13 PDT 2011
hollyby @chemosabe Can you say more? #hpm
Wed May 11 18:39:26 PDT 2011
renee_berry RT @ctsinclair: It is interesting many HC professionals feel autonomy overrides
often, whereas patients often note feeling powerless cc @renee_berry #hpm
Wed May 11 18:39:29 PDT 2011
MeredithGould @renee_berry @ctsinclair Or patients can't even conceive of Autonomy? #hpm
Wed May 11 18:39:56 PDT 2011
PracticalWisdom RT @ctsinclair: nteresting HC profess. feel autonomy overrides often, whereas
patients often note feeling powerless cc @renee_berry #HPM
Wed May 11 18:40:00 PDT 2011
MatthewsMichele RT @renee_berry: @ctsinclair agree though think OFTEN the case- autonomy is not
possible w/o informed medical decision making... which I think is often #hpm
Wed May 11 18:40:04 PDT 2011
thinkalot RT @PracticalWisdom: Practical Wis.RT @RossJeanette:T2 I like 2 put pt's
everything U want 2 eat diet as opposed 2 diabetic renal cardiac Diet its about QOL
#HPM
Wed May 11 18:40:38 PDT 2011
ctsinclair RT @MeredithGould: @renee_berry @ctsinclair Or patients cant even conceive of
Autonomy? "foreign concept?" #hpm
Wed May 11 18:40:46 PDT 2011
chemosabe @hollyby attachment to treating team, difficult to trust new hpm team to mx dz
appropriately. particular if goal of care now comfort #hpm
Wed May 11 18:40:51 PDT 2011
renee_berry yes, how can they w/o clear information RT @MeredithGould @renee_berry
@ctsinclair Or patients cant even conceive of Autonomy? #hpm
Wed May 11 18:41:15 PDT 2011
aliciabloom @ctsinclair HC providers often respect autonomy when pts make decisions they
think are right. otherwise, they order psych consults. #hpm
Wed May 11 18:41:39 PDT 2011
MatthewsMichele @MeredithGould @renee_berry @ctsinclair Good point! I'd guess pts often don't
think they are in the drivers seat of their #healthcare. #hpm
Wed May 11 18:41:44 PDT 2011
20. Wed May 11 18:41:44 PDT 2011
drpippa great point. RT @chemosabe: attachment to treating team, diff to trust new hpm
team. particularly if goal of care now comfort #hpm
Wed May 11 18:41:57 PDT 2011
PracticalWisdom RT @chemosabe: @hollyby attachment 2 treating team, difficult 2 trust new hpm
team 2 mx dz approp.. partic if goal of care now comfort #HPM
Wed May 11 18:41:59 PDT 2011
EOLnavigator Hey there. 20 mins is better than 0 mins #hpm
Wed May 11 18:42:01 PDT 2011
ctsinclair @chemosabe Agree with you. Have had patients say they went for more chemo in
part because they like the staff, same with dialysis. #hpm
Wed May 11 18:42:06 PDT 2011
hollyby @chemosabe:Thx... so they actually switch care teams. That could be challenging.
#hpm
Wed May 11 18:42:07 PDT 2011
LVADone RT @ctsinclair: It is interesting many HC professionals feel autonomy overrides
often, whereas patients often note feeling powerless cc @renee_berry #hpm
Wed May 11 18:42:10 PDT 2011
ctsinclair RT @EOLnavigator: Hey there. 20 mins is better than 0 mins "Glad you are here
before the buzzer!" #hpm
Wed May 11 18:42:29 PDT 2011
renee_berry RT @MatthewsMichele: @MeredithGould @renee_berry @ctsinclair Good point! I'd
guess pts often don't think they are in the drivers seat of their #healthcare. #hpm
Wed May 11 18:42:31 PDT 2011
MatthewsMichele Definitely! You made it...glad you're here! RT @EOLnavigator: Hey there. 20 mins is
better than 0 mins #hpm
Wed May 11 18:43:02 PDT 2011
HerHealthySelf RT @PracticalWisdom: Loving RT @SheyontheBay: @RossJeanette Diet of the
dying.Remember a dying chocoholic, couldnt eat we swabbed Hershey syrup on lips
#HPM
Wed May 11 18:43:14 PDT 2011
PracticalWisdom Remarkable. RT @ctsinclair: @chemosabe Agree Have had pt's say they went 4#
chemo because they like the staff, same with dialysis. #HPM
Wed May 11 18:43:24 PDT 2011
ctsinclair @aliciabloom RE: Disagree with the doc = psych consult. See this less with good
integration of a palliative care team. #hpm
Wed May 11 18:43:37 PDT 2011
MeredithGould How could patients possibly think they have any control/say? The entire system is set
up to disabuse them of that notion. #hpm
Wed May 11 18:43:38 PDT 2011
21. Wed May 11 18:43:38 PDT 2011
aliciabloom @ctsinclair @chemosabe agreed. they don't want to "disappoint" their physician &
care team. #hpm
Wed May 11 18:43:43 PDT 2011
chemosabe @hollyby yep we tried models we called shared care where pt still sees both teams.
can be just as difficult to mx as hand over #hpm
Wed May 11 18:44:19 PDT 2011
LVADone RT @aliciabloom: @ctsinclair HC providers often respect autonomy when pts make
decisions they think are right. otherwise, they order psych consults. #hpm
Wed May 11 18:44:20 PDT 2011
hollyby True. RT @ctsinclair: @aliciabloom RE: Disagree with the doc = psych consult. See
this less with good integration of palliative care. #hpm
Wed May 11 18:44:26 PDT 2011
renee_berry RT @MeredithGould: How could patients possibly think they have any control/say?
The entire system is set up to disabuse them of that notion. #hpm
Wed May 11 18:44:44 PDT 2011
PracticalWisdom @aliciabloom @ctsinclair @chemosabe: Sounds like some Boundary Issues or
some other challenging dynamics at play. #HPM
Wed May 11 18:45:08 PDT 2011
hollyby Moving on to Topic #3 soon… ready to jump frames a bit? #hpm
Wed May 11 18:45:22 PDT 2011
aliciabloom good point. RT @ctsinclair: RE: Disagree with the doc = psych consult. See this less
with good integration of a palliative care team. #hpm
Wed May 11 18:45:38 PDT 2011
lugstew At hbo screening of dying in Oregon. #hpm #hospice
Wed May 11 18:45:51 PDT 2011
EOLnavigator This is why open access is a better idea for hospice care RT @hollyby:
@chemosabe:..switch care teams......challenging. #hpm
Wed May 11 18:45:52 PDT 2011
renee_berry patients deserve to know RT @aliciabloom @ctsinclair @chemosabe agreed. they
dont want to "disappoint" their physician & care team #hpm
Wed May 11 18:45:59 PDT 2011
PracticalWisdom RT @chemosabe: @hollyby we tried models we called shared care where pt still
sees both teams. can be just difficult 2 mx as hand over #HPM
Wed May 11 18:46:16 PDT 2011
EOLnavigator Clinicians don't know how to discuss options. RT @MeredithGould: The entire
system is set up to disabuse them of that notion. #hpm
Wed May 11 18:46:44 PDT 2011
hollyby T3: I recently learned about threshold choirs, volunteers who sing for the dying. Any
22. hollyby T3: I recently learned about threshold choirs, volunteers who sing for the dying. Any
experience with them? http://bitly.com/lEjzfQ #hpm
Wed May 11 18:46:50 PDT 2011
PracticalWisdom RT @renee_berry: pts' deserve 2 know RT @aliciabloom @ctsinclair @chemosabe
agreed. they dont want 2 disappoint" physician & care team #HPM
Wed May 11 18:46:58 PDT 2011
ctsinclair @MeredithGould spend some time rounding with your local doc and you will see the
amount of deference to patient wishes #hpm
Wed May 11 18:47:03 PDT 2011
LVADone RT @hollyby: True. RT @ctsinclair: @aliciabloom RE: Disagree with the doc = psych
consult. See this less with good integration of palliative care. #hpm
Wed May 11 18:47:28 PDT 2011
apjonas RT @MeredithGould: T1 Families should be prepared & able to provide info about
the patient's spiritual perspective, religious practices, faith & beliefs #hpm
Wed May 11 18:47:39 PDT 2011
MeredithGould @ctsinclair May that be so! #hpm
Wed May 11 18:47:56 PDT 2011
ctsinclair T3: Threshold Choirs? Interesting name. Makes me think of Memorex...like you are
testing a threshold of hearing. #hpm
Wed May 11 18:47:57 PDT 2011
renee_berry RT @ctsinclair: @MeredithGould spend some time rounding with your local doc and
you will see the amount of deference to patient wishes #hpm
Wed May 11 18:47:58 PDT 2011
drpippa yes! truly extraordinary. music can help in ways that I can not. RT @hollyby: T3: I
recently learned about threshold choirs #hpm
Wed May 11 18:48:01 PDT 2011
MeredithGould RT @hollyby: T3: Learned about threshold choirs, volunteers who sing for the dying.
Any experience with them? http://bitly.com/lEjzfQ #hpm
Wed May 11 18:48:17 PDT 2011
RossJeanette T3 one of the hospice agencies has a harp player. She apparently plays tunes that
calm patients. #HPM
Wed May 11 18:48:20 PDT 2011
PracticalWisdom @apjonas @MeredithGould: G8 Points I'd also include understanding of culture.
#HPM
Wed May 11 18:48:28 PDT 2011
renee_berry RT @drpippa: yes! truly extraordinary. music can help in ways that I can not. RT
@hollyby: T3: I recently learned about threshold choirs #hpm
Wed May 11 18:48:31 PDT 2011
ctsinclair @MeredithGould And you will also see some steamrolling of patient preferences and
dignity. Sadly. #hpm
23. dignity. Sadly. #hpm
Wed May 11 18:48:49 PDT 2011
aliciabloom autonomy requires informed consent for which effective communication with patients
& families is essential. #hpm
Wed May 11 18:48:56 PDT 2011
MeredithGould T3 Sounds wonderful. So many ways to ease transition. One pt I was with wanted to
hold a kitty again before he died. #hpm
Wed May 11 18:49:04 PDT 2011
PracticalWisdom Know harp not choir RT @RossJeanette: T3 one of the hospice agencies has a harp
player. She apparently plays tunes that calm patients. #HPM
Wed May 11 18:49:10 PDT 2011
MatthewsMichele @renee_berry @MeredithGould lets face it: takes lots of tenacity to get over 'doc
knows best' mentality to inform your own #healthcare #hpm
Wed May 11 18:49:19 PDT 2011
ctsinclair Any #MBTC or #MusicTherapy people want to come comment on Threshold Choirs?
#hpm
Wed May 11 18:49:27 PDT 2011
SheyontheBay T3 I ve worked at a hospital where both a chaplain and a hospice nurse sang -
sooooo soothing #hpm
Wed May 11 18:49:32 PDT 2011
apjonas RT @MeredithGould: T1 Let docs/teams know if there are estranged family members
who might be brought back into conversation/relationship at this point. #hpm
Wed May 11 18:49:42 PDT 2011
PracticalWisdom T3: Our church has ladies who knit Prayer Shawls for very sick or dying. #HPM
Wed May 11 18:49:47 PDT 2011
MeredithGould @ctsinclair Which is why I liked serving as a patient advocate, especially in hospice
situations. #hpm
Wed May 11 18:49:52 PDT 2011
ctsinclair Any #MTBC or #MusicTherapy people want to come comment on Threshold Choirs?
(fixed hashtag) #hpm
Wed May 11 18:50:03 PDT 2011
renee_berry absolutely @MatthewsMichele @renee_berry @MeredithGould #hpm
Wed May 11 18:50:05 PDT 2011
renee_berry RT @MatthewsMichele: @renee_berry @MeredithGould lets face it: takes lots of
tenacity to get over 'doc knows best' mentality to inform your own #healthcare #hpm
Wed May 11 18:50:12 PDT 2011
aliciabloom @ a hospital where i do #palliative care consults there are music therapists and
"musicians on-call." our #hospice unit has a harpist. #hpm
Wed May 11 18:50:16 PDT 2011
24. SheyontheBay T3 Calvary's music therapy does flute work for dyspnea #hpm
Wed May 11 18:50:19 PDT 2011
MatthewsMichele T3 havent heard about it, what has been the response from patients and families?
#hpm
Wed May 11 18:50:43 PDT 2011
hollyby @MeredithGould One of the most powerful moments I had was with a pt who ignored
me and just held his cat, who came to the hospital #hpm
Wed May 11 18:50:50 PDT 2011
chemosabe @SheyontheBay does it work... what is the science? #hpm
Wed May 11 18:51:05 PDT 2011
drpippa could have so much discussion on music - I have patients who are unresponsive to
everyone/everything except music therapist. #hpm
Wed May 11 18:51:12 PDT 2011
hollyby @MatthewsMichele Haven't hear the threshold choir here in San Diego yet. Hope to
see them soon. #hpm
Wed May 11 18:51:31 PDT 2011
EOLnavigator T3. Need to embrace what is appropriate for the patient / family. Seen alot of things
on an AIDS unit far off my Irish Cath mindset. #hpm
Wed May 11 18:51:35 PDT 2011
ctsinclair RT @drpippa: I have patients who are unresponsive to everyone/everything except
music therapist. #MTBC #hpm
Wed May 11 18:52:05 PDT 2011
MeredithGould I'd so love to be part of that kind of choir. What a blessing to sing in that context. #hpm
Wed May 11 18:52:15 PDT 2011
renee_berry RT @hollyby: T3: I recently learned about threshold choirs, volunteers who sing for
the dying. Any experience with them? http://bitly.com/lEjzfQ #hpm
Wed May 11 18:52:28 PDT 2011
MatthewsMichele RT @ctsinclair: RT @drpippa: I have patients who are unresponsive to
everyone/everything except music therapist. #MTBC #hpm
Wed May 11 18:52:33 PDT 2011
EOLnavigator We had a "llama" request....had to settle for a goat. RT @MeredithGould: T3 One pt I
was with wanted to hold a kitty again. #hpm
Wed May 11 18:52:38 PDT 2011
PracticalWisdom T3: Again be aware of the Pt's preference. Some might want Lenard Skynard vs. A
choir. #HPM
Wed May 11 18:52:52 PDT 2011
MeredithGould @EOLnavigator Oh my! #hpm
Wed May 11 18:52:57 PDT 2011
25. hollyby @MeredithGould There are many groups forming across the US. Anyone know of
community group that are doing this internationally? #hpm
Wed May 11 18:53:07 PDT 2011
ctsinclair Just looked on Wikipedia for the disambiguation page for Threshold - lots of different
connections. Esp Pain Threshold. #hpm
Wed May 11 18:53:36 PDT 2011
MeredithGould @hollyby I should check that out. (Like I have the energy.) Loved having opportunities
to sing at funerals. #hpm
Wed May 11 18:54:15 PDT 2011
drpippa for sure! have heard some rousing tunes! RT @PracticalWisdom: T3: Some might
want Lenard Skynard vs. A choir. #hpm
Wed May 11 18:54:18 PDT 2011
ctsinclair I wish I had a singing voice that could work in a small group like a Threshold Choir.
Sounds like a rewarding experience. #hpm
Wed May 11 18:54:26 PDT 2011
hollyby They would have to have a wide repertoire :) RT @PracticalWisdom: T3: ... Some
might want Lenard Skynard vs. A choir. #hpm
Wed May 11 18:54:28 PDT 2011
ctsinclair RT @hollyby: There are many Threshold Choirs forming across the US. Anyone know
of community group internationally? #hpm
Wed May 11 18:54:56 PDT 2011
katfulton @renee_berry @ctsinclair I have a #MusicTherapy friend who runs a threshold choir
in Flagstaff! #hpm
Wed May 11 18:55:04 PDT 2011
EOLnavigator Staff wouldn't mind Lenard Skynard either! RT @PracticalWisdom: T3: Some might
want Lenard Skynard vs. A choir. #hpm
Wed May 11 18:55:10 PDT 2011
MatthewsMichele @MeredithGould ditto! if only i were blessed with good vocals! Singing is def not my
ministry! #hpm
Wed May 11 18:55:23 PDT 2011
aliciabloom hearing is often the sense that stays w/ patients the longest. music can be soothing
& powerful way to communicate with a patient @ EOL #hpm
Wed May 11 18:55:37 PDT 2011
MeredithGould @ctsinclair Always felt better after choir rehearsal and singing for worship, even if I
felt like crap going in. #HPM
Wed May 11 18:56:08 PDT 2011
renee_berry @ctsinclair when I started as a #hospice volunteer, they asked what do you do to
deStress, I said sing in the car..but I have no voice #hpm
Wed May 11 18:56:16 PDT 2011
26. SheyontheBay @chemosabe @SheyontheBay dont know the science behind it - it sure seems to
work! I bet Andy at Calvary could tell you #hpm
Wed May 11 18:56:17 PDT 2011
RachelleNorman @ctsinclair I'm just catching the tail end of this chat, but I can say that I've actually
never heard of Threshold Choirs. #googlingnow #hpm
Wed May 11 18:56:17 PDT 2011
MeredithGould @MatthewsMichele I miss it a lot. #hpm
Wed May 11 18:56:26 PDT 2011
ctsinclair @PracticalWisdom You could always make your own 'Last Playlist' via Life Before
Death http://hpm.md/lN2fKH #hpm
Wed May 11 18:56:26 PDT 2011
renee_berry RT @ctsinclair: I wish I had a singing voice that could work in a small group like a
Threshold Choir. Sounds like a rewarding experience. #hpm
Wed May 11 18:56:29 PDT 2011
apjonas @aliciabloom Hearing stays longer than touch? #HPM
Wed May 11 18:56:33 PDT 2011
katfulton Just arrived at #hpm. Thx for the invite, @ctsinclair =) I'm a board-certified
#MusicTherapy -ist. Loving this discussion so far!
Wed May 11 18:56:44 PDT 2011
LVADone :-) “@hollyby: They would have to have a wide repertoire :) RT @PracticalWisdom: T3:
... Some might want Lenard Skynard vs. A choir. #hpm”
Wed May 11 18:56:51 PDT 2011
drpippa RT @aliciabloom: hearing often sense that stays w/ patients longest. music can be
soothing, powerful way to communicate with a patient #hpm
Wed May 11 18:56:54 PDT 2011
MatthewsMichele Wish I had a singing voice that could work in a small group like a Threshold Choir.
Sounds like a rewarding exp. via @ ctsinclair. #hpm
Wed May 11 18:56:57 PDT 2011
JordanEM @RachelleNorman @ctsinclair Me either. More info please on Threshold choir #hpm
Wed May 11 18:57:18 PDT 2011
EOLnavigator All kinds of music does it for me too! RIP Bob Marley. RT @MeredithGould:
@ctsinclair #hpm
Wed May 11 18:57:28 PDT 2011
katfulton True! RT @aliciabloom: hearing often sense that stays w/ patients longest. music
can be soothing, powerful way to communicate with a pt #hpm
Wed May 11 18:57:35 PDT 2011
MeredithGould @apjonas @aliciabloom That's my question, too. I'd think both hearing & touch last
equally long. #hpm
27. equally long. #hpm
Wed May 11 18:57:42 PDT 2011
PracticalWisdom RT @drpippa: RT @aliciabloom: hearing often sense stays w/ patients longest.
music can b soothing, powerful way 2 communicate w/ PT #HPM
Wed May 11 18:57:54 PDT 2011
aliciabloom @apjonas hard to know for sure, but have seen patients completely comatose have
increase in respiratory rate when a loved one speaks. #hpm
Wed May 11 18:58:00 PDT 2011
SheyontheBay My daughter's 1 st complete sentence was "no sing mama" She STILL says it (she's
33) #hpm
Wed May 11 18:58:06 PDT 2011
MatthewsMichele RT @PracticalWisdom: RT @drpippa: RT @aliciabloom: hearing often sense stays
w/ patients longest. music can b soothing, powerful way 2 communicate w/ PT #HPM
Wed May 11 18:58:22 PDT 2011
PracticalWisdom T3: Asked a PT who was actively dying about music preference. She looked me in the
eye and said we will not discuss this! #HPM
Wed May 11 18:58:40 PDT 2011
ctsinclair @renee_berry Hopefully you have not had to sing too much lately! ;-) #hpm
Wed May 11 18:58:43 PDT 2011
hollyby Ok all! Thanks so much for the wonderful conversation! Last thoughts? FYIs? Twitter
hugs? #hpm
Wed May 11 18:58:46 PDT 2011
MatthewsMichele LOL! RT @SheyontheBay: My daughters 1 st complete sentence was "no sing
mama" She STILL says it (shes 33) #hpm
Wed May 11 18:58:47 PDT 2011
aliciabloom @renee_berry i love to belt it out in the car, too...but i know it sounds terrible! #hpm
Wed May 11 18:58:51 PDT 2011
PracticalWisdom RT @SheyontheBay: My daughters 1 st complete sentence was "no sing mama" She
STILL says it (shes 33) #HPM
Wed May 11 18:58:53 PDT 2011
ctsinclair RT @SheyontheBay: My daughters 1 st complete sentence was "no sing mama" She
STILL says it (shes 33) "Sounds like my kids" #hpm
Wed May 11 18:59:07 PDT 2011
renee_berry T3 My first hospice patient used to sing a song so loud that doors would be
slammed shut when I would visit & he would sing for me :) #hpm
Wed May 11 18:59:12 PDT 2011
RachelleNorman Wow, Threshold Choir looks like a beautiful ministry. As @PracticalWisdom said, the
repertoire might be a bit narrow to meet all needs. #hpm
Wed May 11 18:59:16 PDT 2011
28. Pallimed Make sure to check out Palliative Care Grand Rounds (it's back!) with @Daitpcg at
Palliative Care Success http://hpm.md/lxIYWv #hpm
Wed May 11 18:59:17 PDT 2011
drpippa great tweetchat this evening! Many thanks @hollyby! now lets all go sing together.
have a great night all. #hpm
Wed May 11 18:59:32 PDT 2011
aliciabloom @hollyby high fives & fist bumps for a great #hospice & #palliative medicine tweet
chat! #hpm
Wed May 11 18:59:44 PDT 2011
MatthewsMichele RT @drpippa: great tweetchat this evening! Many thanks @hollyby! now lets all go
sing together. have a great night all. #hpm
Wed May 11 18:59:58 PDT 2011
RachelleNorman True! RT @aliciabloom: hearing often sense that stays w/ patients longest. music
can be soothing, powerful way to communicate with a pt #hpm
Wed May 11 18:59:59 PDT 2011