SlideShare una empresa de Scribd logo
1 de 36
Descargar para leer sin conexión
1
Welcome to the USC UCEDD Webinar Series
for Individuals with Disabilities & Parents
funded by grant #90DD0695 from
the Administration on Intellectual and Developmental Disabilities (AIDD)
Administration on Community Living
July 28, 2016
2
Your Moderator
2
Susan Kanegawa
USC UCEDD Family Support Coordinator
skanegawa@chla.usc.edu
www.uscucedd.org
The USC University Center of Excellence in Developmental Disabilities at Children’s Hospital
Los Angeles (USC UCEDD) is one of 68 UCEDDs funded to promote systemic change,
advocacy, and capacity building in states on behalf of individuals with, or at risk for,
developmental, behavioral and/or special health care needs, and their families.
The USC UCEDD Webinar series is designed to educate the community about current policy
issues which impact the lives of people we serve and their families. Our primary audience is
individuals with special needs and their families. At this time, our webinars are in English only.
We are exploring methods to make this series available in other languages in the future.
3
Structure and Logistics
3
Take notes Type your questions
Download
slides
Watch and
Share
Take
Survey
During the Webinar
After the Webinar
Give your opinion
4
Poll:
Can you hear Susan and Sandy?
•4
Let us know in the chat box if we need
to speak louder.
5•5
Sandy Magaña, PhD
Professor of Disability and Human Development at the
University of Illinois at Chicago
July 28, 2016
Taking Care of Yourself
as Caregiver
of a family member with a
developmental disability
6
About Dr. Sandy Magaña
Dr. Magaña is a Professor of Disability and Human
Development at the University of Illinois at Chicago, and the
Director of the Family Support Research and Training Center.
Email: maganas@uic.edu
Website: Family Support Research and Training Center
at the University of Illinois at Chicago
http://fsrtc.ahslabs.uic.edu/
Dr. Magaña’s research focus is on the cultural context of families who care for people with
disabilities and mental illness, and the experiences of parents who have disabilities. Her
concentration is on health disparities of minority caregivers, and diagnosis and treatment
disparities for Latino and Black children with autism spectrum disorder, and on interventions
to reduce health and service disparities.
The Family Support Research and Training Center (FSRTC)
is a collaboration of researchers and organizations whose
focus is on gathering and generating knowledge about
the needs and experiences of families who provide
support to children and adults with disabilities. The FRSRTC aims to bridge
resources and information across diverse groups to develop policies and
practices related to family support.
7
The FSRTC is housed at the University of Illinois at Chicago’s Institute on
Disability and Human Development (IDHD), which is the University Center
for Excellence in Developmental Disabilities Education, Research, and
Service (UCEDD) for the State of Illinois.
Importance
of caring
for yourself
Signs of
stress and
depression
Including
others in
caregiving
Setting
health goals
for yourself
“By Caring
for Myself”
Program
Overview of the Webinar
8
9
Importance
of caring
for yourself
Signs of
stress and
depression
Including
others in
caregiving
Setting
health goals
for yourself
“By Caring
for Myself”
Program
Recognizing the importance of
caring for yourself as a caregiver
Story about Joanna
• Joanna is married, has a 4 year old son with autism, and two typically-
developing daughters who are 7 and 10 years old
• Listen to the story about Joanna’s stressful situation
• Let’s think about the ways that Joanna’s situation may be unique, and
ways that it is similar to other parents’ experiences
– Joanna’s son is young and required speech therapy
– Parents of adolescents or adults with I/D.D. may face other unique
challenges
• We will revisit this story when discussing ways to reduce stress
10
Research on family caregivers
of children and adults with IDD
• Research shows that family caregivers compared to non-caregivers
– face higher rates of depressive symptoms—this was found across
several studies
– Have higher rates of obesity, high blood pressure, and arthritis
(based on a study in Illinois)
– Poorer self-rated health status
• Research based on a national data set shows that African American and
Latino caregivers of children with I/D.D., compared to their non-caregiving
counterparts
– Face higher rates of depressive symptoms, heart problems, arthritis,
and diabetes
– Are less likely to see a doctor for their own health care
11
By caring for myself, I can
better care for my family
• We developed a health intervention focused specifically on caregivers’
health. I will share with you two of the sessions we cover in this
intervention about recognizing and reducing stress
• In working with caregivers, we find that many view taking care of their child
or adult with I/D.D. as their primary responsibility
• As in Joanna’s story, this can include many tasks and roles, such as taking him
or her to the doctor or for activities, managing his or her schedule, helping
with and teaching self-help skills, and managing challenging behaviors
• Research shows that managing challenging behaviors is one of the
strongest factors in high levels of stress among I/D.D. caregivers
12
• As a result of the caregiving responsibilities,
caregivers often do not:
– Take free time to relax
– Find time to do things they like to do
– Go out with friends and other loved ones
• They often feel it is selfish to do these things, but consider the “airplane”
example:
– You may have heard the flight attendant say that in case of emergency,
put the oxygen mask on yourself first and then on your child or others
– Why do they make this recommendation?
• Think about what you do to take care of yourself on a regular basis
13
14
Importance
of caring
for yourself
Signs of
stress and
depression
Including
others in
caregiving
Setting
health goals
for yourself
“By Caring
for Myself”
Program
Recognizing signs of stress and
depression
Recognizing signs of stress
• Stress can result from any situation or thought that makes you feel
frustrated, angry, or anxious. What is stressful to one person may not
be stressful to another
• The body has a natural response to stress and releases stress hormones
to protect you
• Your body reacts when you are in danger, warning you to get out of harm’s
way— for example, a car coming at you when you are crossing a street
• Your body does not differentiate the different types of stressful
situations
• A pile-up of stressful situations can cause health problems
15
• When your body activates the stress reflex:
– Your arteries contract, and this reduces
the blood flow to the heart
– Your blood pressure rises
– Your blood becomes thicker, increasing
the likelihood of developing a blood clot
• Too much stress can:
– Cause heart rate problems, heart attacks or other health problems
– Weaken the immune system, increasing the likelihood of colds and
infections
– Trigger asthma attacks, arthritis, and intestinal problems
– Affect the way you manage everything in your life
– Contribute to anxiety, depression and anger
16
Ways to reduce stress
• Let’s think back to Joanna’s story. What are ways to help her reduce
stress in her situation?
– One key way would be to involve other family members in the
responsibilities so she isn’t doing it all herself:
• She could ask her husband to help her with the housework
• The children could help by picking up their things and
washing dishes
• Her husband could help with the son at night, or with the older
children in the morning, or with preparing the lunches
– Joanna could:
• Leave the housework for the next day
• Try to schedule appointments at a later hour
17
• No one can avoid all stressful situations, but we
can learn to manage stress
– Use respite services if you have them—to take
time to do things you want to do
– Get professional help for specific needs such as
challenging behaviors
– Maintain a healthy lifestyle including physical
activity, healthy diet and adequate sleep
– Avoid smoking, too much alcohol or substance
abuse
– Don’t be afraid to ask for support!
– Engage in a mindfulness activity such as a
breathing exercise, yoga, or meditation
18
Depression
• Too much stress can lead to depression; however it is not the only
contributing factor
• Depression may be described as feeling sad, blue, unhappy, miserable
or down in the dumps
• Most of us feel this way at one time or another,
but it is usually short-lived
• True clinical depression is a mood disorder
in which feelings of sadness, loss, anger or
frustration interfere with everyday life for
extended periods of time
• Clinical depression requires treatment—it is important to seek out
mental health care
19
There are different types of
depressive disorders
• Major Depressive Disorder: the symptoms are severe and interfere with
your ability to work, eat, sleep, etc. A major depressive episode may occur
once in a lifetime, but a person can have various episodes
• Dysthymic Disorder: the symptoms of depression last a long time (2 years
or more) but are less severe than in major depressive disorder
• Postpartum Disorder: Generally, it is a major depressive episode within
the first month after giving birth
• Seasonal Depression: This type of depression occurs during the winter
months, when the hours of sunlight decrease, and generally disappears
during spring
20
Signs & symptoms of depression
• Feeling depressed or down almost every day
• Losing interest or not being able to enjoy the things you used to enjoy
• Changes in appetite and/or weight (eating either less or more than you
used to)
• Sleeping problems (difficulty falling asleep, waking up often, waking up
very early and unable to fall asleep again, sleeping too much)
• Changes in speed of movement (either being too restless or moving too
slowly)
• Feeling tired all of the time
• Feeling undervalued or guilty
• Problems thinking, concentrating, or making decisions
• Having thoughts of death or of hurting oneself
21
Seeking help
• If you have 5 or more of the symptoms described, it is important to see a
health care professional
• Depending on your health insurance or resources you may:
– First see a primary physician who can
treat you or refer you to a mental
health professional
– Contact a mental health agency such
as your County Mental Health
– Go to a government-funded health
care clinic to see a medical provider
who can treat or refer
22
23
Importance
of caring
for yourself
Signs of
stress and
depression
Including
others in
caregiving
Setting
health goals
for yourself
“By Caring
for Myself”
Program
Including others in caregiving
Including others
• Remember Joanna’s situation--she needed to include her family members
in daily tasks
• Including others can go beyond your immediate family
• Let’s think about your context:
– Make a list of the top three tasks or problems that you need help with
– Next let’s think of who in your life provides some sort of support to
you (we will explore this with the ecomap)
– Last, think about who you could ask for help with the above tasks or
problems
24
25
You and your
immediate
family
Culture
or
religion
Health
Care
Work
Social
Services
Family
members
Recreation
Friends
School
26
Importance
of caring
for yourself
Signs of
stress and
depression
Including
others in
caregiving
Setting
health goals
for yourself
“By Caring
for Myself”
Program
Setting health goals for yourself
27
Name __________________________________ Date _____________
Healthy Habits Goal Contract
Your behaviors help you to achieve good health. It is important to have clear goals for
yourself. Set one goal now and make it specific, measurable, easy and important for
you. After you have achieved one goal, move on to another goal.
Exercise ● Healthy Eating ● Relaxation ● Health ● Asking for
Checkups Help
Important Area to Change: _____________________________________
Specific Goal: ________________________________________________
Action Plan: _________________________________________________
Obstacles: ____________________________________________________
Solutions: ____________________________________________________
28
Importance
of caring
for yourself
Signs of
stress and
depression
Including
others in
caregiving
Setting
health goals
for yourself
“By Caring
for Myself”
Program
“By Caring for Myself” Program
“By Caring for Myself” Program
• Some of what we discussed was part of a health intervention we designed
for Latina caregivers
• The full title is “By Caring for Myself, I Can Care Better for My Family”
– Because Latina mothers often feel caring for oneself is selfish, it was
important to include the family in the title
• We use promotoras de salud or community health workers to deliver the
intervention through either home visits or group sessions
– The promotoras are mothers of children with developmental
disabilities
29
Promotora
*Mother of
child with
I/D.D.
Share
common
identity with
participant
Health
educator in
Latino
community
Respected
and visible
Bilingual:
Communication
Bridge
Understand
host
community
* Unique to our study
• Session One: Taking care of oneself & pre-test
• Session Two: Health care
• Session Three: Well-being activity
• Session Four: Nutrition
• Session Five: Exercise
• Session Six: Stress & depression
• Session Seven: Including others
• Session Eight: How to sustain growth & post-test
“By Caring for Myself” Curriculum
Eight-week health education program
Using “By Caring for Myself”
If you are representing an agency that would like to use the program, we
can do a “train the trainer” program.
If interested, contact me:
Sandy Magaña,
UIC Department of Disability and Human Development
(312) 355-4537
maganas@uic.edu
32
Resources
• Free booklets in English and Spanish about depression:
https://www.nimh.nih.gov/health/publications/depression-listing.shtml
• Information on stress:
https://www.nimh.nih.gov/health/publications/stress/index.shtml
• Los Angeles County Department of Mental Health
http://dmh.lacounty.gov/wps/portal/dmh
33
34
Poll:
Do you now have a better understanding
about taking yourself as a caregiver?
35
Ask Us a Question
Please type your questions
(Top-left corner of your MeetingBurner screen)
36
Thank you for attending
and interacting!!
You have access to webinar slides, handouts and video recording.
Don’t leave yet!! Please take 3 minutes to answer a survey about
your experience with this webinar.
UCEDD SlideShare
Page
UCEDD YouTube
Playlist
Webinar Evaluation
Survey

Más contenido relacionado

La actualidad más candente (20)

Mental health
Mental healthMental health
Mental health
 
Anger management
Anger managementAnger management
Anger management
 
Individual psychotherapy
Individual psychotherapyIndividual psychotherapy
Individual psychotherapy
 
Co-Dependency and the Addiction Recovery Process
Co-Dependency and the Addiction Recovery ProcessCo-Dependency and the Addiction Recovery Process
Co-Dependency and the Addiction Recovery Process
 
Depression : let's talk.
Depression : let's talk.Depression : let's talk.
Depression : let's talk.
 
Anger management final
Anger management finalAnger management final
Anger management final
 
Psychiatric emergencies
Psychiatric emergenciesPsychiatric emergencies
Psychiatric emergencies
 
Handling stress at work
Handling stress at workHandling stress at work
Handling stress at work
 
Ocd overview
Ocd overviewOcd overview
Ocd overview
 
Grief therapy
Grief therapyGrief therapy
Grief therapy
 
Anxiety management strategies
Anxiety management strategiesAnxiety management strategies
Anxiety management strategies
 
Assertiveness Training
Assertiveness TrainingAssertiveness Training
Assertiveness Training
 
Cognitive Behavioral therapy (CBT) for Obsessive Compulsive Disorder
Cognitive Behavioral therapy (CBT) for Obsessive Compulsive DisorderCognitive Behavioral therapy (CBT) for Obsessive Compulsive Disorder
Cognitive Behavioral therapy (CBT) for Obsessive Compulsive Disorder
 
Anxiety
AnxietyAnxiety
Anxiety
 
Anger management
Anger managementAnger management
Anger management
 
Coping and Behavior Modification
Coping and Behavior ModificationCoping and Behavior Modification
Coping and Behavior Modification
 
Abnormal psychology Stress and mental health
 Abnormal psychology Stress and mental health Abnormal psychology Stress and mental health
Abnormal psychology Stress and mental health
 
Cognitive Distortions (Errors in Thinking)
Cognitive Distortions (Errors in Thinking)Cognitive Distortions (Errors in Thinking)
Cognitive Distortions (Errors in Thinking)
 
Coping with loss
Coping with lossCoping with loss
Coping with loss
 
Anger management
Anger management Anger management
Anger management
 

Destacado

Webinar: “I Got Hired!” Increasing Employment of Youth & Adults with Develop...
Webinar: “I Got Hired!”  Increasing Employment of Youth & Adults with Develop...Webinar: “I Got Hired!”  Increasing Employment of Youth & Adults with Develop...
Webinar: “I Got Hired!” Increasing Employment of Youth & Adults with Develop...USC UCEDD at Children's Hospital Los Angeles
 
Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...
Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...
Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...USC UCEDD at Children's Hospital Los Angeles
 

Destacado (20)

Webinar: Every Student Succeeds Act (ESSA) - How it Affects Students with Int...
Webinar: Every Student Succeeds Act (ESSA) - How it Affects Students with Int...Webinar: Every Student Succeeds Act (ESSA) - How it Affects Students with Int...
Webinar: Every Student Succeeds Act (ESSA) - How it Affects Students with Int...
 
Webinar: “I Got Hired!” Increasing Employment of Youth & Adults with Develop...
Webinar: “I Got Hired!”  Increasing Employment of Youth & Adults with Develop...Webinar: “I Got Hired!”  Increasing Employment of Youth & Adults with Develop...
Webinar: “I Got Hired!” Increasing Employment of Youth & Adults with Develop...
 
Webinar: Person Centered Planning
Webinar: Person Centered PlanningWebinar: Person Centered Planning
Webinar: Person Centered Planning
 
Webinar: Independent Living Centers (ILCs) for People with Disabilities
Webinar: Independent Living Centers (ILCs) for People with DisabilitiesWebinar: Independent Living Centers (ILCs) for People with Disabilities
Webinar: Independent Living Centers (ILCs) for People with Disabilities
 
Webinar: The Rules of Sex for People with Developmental Disabilities
Webinar: The Rules of Sex for People with Developmental Disabilities Webinar: The Rules of Sex for People with Developmental Disabilities
Webinar: The Rules of Sex for People with Developmental Disabilities
 
The Next Generation of Advocates Siblings of people with developmental disab...
The Next Generation of Advocates  Siblings of people with developmental disab...The Next Generation of Advocates  Siblings of people with developmental disab...
The Next Generation of Advocates Siblings of people with developmental disab...
 
Webinar: Transforming Ideas Into Law & How To Get Involved
Webinar: Transforming Ideas Into Law & How To Get InvolvedWebinar: Transforming Ideas Into Law & How To Get Involved
Webinar: Transforming Ideas Into Law & How To Get Involved
 
Early Identification & Linkage for Autism and Other Developmental Disabilities
Early Identification & Linkage for Autism and Other Developmental DisabilitiesEarly Identification & Linkage for Autism and Other Developmental Disabilities
Early Identification & Linkage for Autism and Other Developmental Disabilities
 
Webinar: Navigating the Criminal Justice System for People with I/DD
Webinar: Navigating the Criminal Justice System for People with I/DD Webinar: Navigating the Criminal Justice System for People with I/DD
Webinar: Navigating the Criminal Justice System for People with I/DD
 
Webinar: In-Home Supportive Services (IHSS) For People with Intellectual & De...
Webinar: In-Home Supportive Services (IHSS) For People with Intellectual & De...Webinar: In-Home Supportive Services (IHSS) For People with Intellectual & De...
Webinar: In-Home Supportive Services (IHSS) For People with Intellectual & De...
 
Webinar: Mental Health Services in Schools For Students with Intellectual / D...
Webinar: Mental Health Services in Schools For Students with Intellectual / D...Webinar: Mental Health Services in Schools For Students with Intellectual / D...
Webinar: Mental Health Services in Schools For Students with Intellectual / D...
 
Webinar: Housing For People with Intellectual / Developmental Disabilities
Webinar: Housing For People with Intellectual / Developmental DisabilitiesWebinar: Housing For People with Intellectual / Developmental Disabilities
Webinar: Housing For People with Intellectual / Developmental Disabilities
 
Parent, Peer & Family Certification Webinar: Providing Support to Other Families
Parent, Peer & Family Certification Webinar: Providing Support to Other FamiliesParent, Peer & Family Certification Webinar: Providing Support to Other Families
Parent, Peer & Family Certification Webinar: Providing Support to Other Families
 
CaPROMISE Webinar
CaPROMISE WebinarCaPROMISE Webinar
CaPROMISE Webinar
 
"Learn the Signs. Act Early." Webinar
"Learn the Signs.  Act Early."  Webinar"Learn the Signs.  Act Early."  Webinar
"Learn the Signs. Act Early." Webinar
 
Autism and Insurance Webinar 11/19/15
Autism and Insurance Webinar 11/19/15Autism and Insurance Webinar 11/19/15
Autism and Insurance Webinar 11/19/15
 
Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...
Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...
Upcoming changes to Medicaid’s Home and Community Based Services (HCBS) Regul...
 
Common Core and Special Education: What Families Need to Know
Common Core and Special Education: What Families Need to KnowCommon Core and Special Education: What Families Need to Know
Common Core and Special Education: What Families Need to Know
 
Post-Secondary Education for People with Intellectual Disabilities Webinar - ...
Post-Secondary Education for People with Intellectual Disabilities Webinar - ...Post-Secondary Education for People with Intellectual Disabilities Webinar - ...
Post-Secondary Education for People with Intellectual Disabilities Webinar - ...
 
Achieving a Better Life Experience (ABLE) Act Webinar
Achieving a Better Life Experience (ABLE) Act WebinarAchieving a Better Life Experience (ABLE) Act Webinar
Achieving a Better Life Experience (ABLE) Act Webinar
 

Similar a Taking Care of Yourself as Caregiver of a Family Member With a Developmental Disability

Mental Health and Coping With Stress in Middle and Late Adolescence.pdf
Mental Health and Coping With Stress in Middle and Late Adolescence.pdfMental Health and Coping With Stress in Middle and Late Adolescence.pdf
Mental Health and Coping With Stress in Middle and Late Adolescence.pdfJoyDelaPea5
 
The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...
The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...
The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...Rama Shukla
 
Mental-health-and-well-being (1).pptx
Mental-health-and-well-being (1).pptxMental-health-and-well-being (1).pptx
Mental-health-and-well-being (1).pptxMichaelBermas3
 
iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...
iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...
iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...iCAADEvents
 
Mental Health Senior High 2017 2018
Mental Health Senior High 2017 2018Mental Health Senior High 2017 2018
Mental Health Senior High 2017 2018CMHA-Calgary
 
Project care depression and anxiety
Project care depression and anxietyProject care depression and anxiety
Project care depression and anxietyCleveland Clinic
 
dealing- with- mental health stress.pptx
dealing- with- mental health stress.pptxdealing- with- mental health stress.pptx
dealing- with- mental health stress.pptxRODELAZARES3
 
Hmns10085 mod8(1)
Hmns10085 mod8(1)Hmns10085 mod8(1)
Hmns10085 mod8(1)Mark Felvus
 
Understanding mental health and mental illness
Understanding mental health and mental illnessUnderstanding mental health and mental illness
Understanding mental health and mental illnessMD. Rifat Hossain
 
Multi Media Presentation: Problems of Well-Being and Mental Health
Multi Media Presentation: Problems of Well-Being and Mental HealthMulti Media Presentation: Problems of Well-Being and Mental Health
Multi Media Presentation: Problems of Well-Being and Mental Healthlinkert93
 
Youth Forum on Mental Health Awareness.pptx
Youth Forum on Mental Health Awareness.pptxYouth Forum on Mental Health Awareness.pptx
Youth Forum on Mental Health Awareness.pptxleojadeabiertas2
 
world diabetes day awareness lecture note
world diabetes day awareness lecture noteworld diabetes day awareness lecture note
world diabetes day awareness lecture notessuser2b23a31
 
Mental-Health-In-Older-Adults-Powerpoint (1).pptx
Mental-Health-In-Older-Adults-Powerpoint (1).pptxMental-Health-In-Older-Adults-Powerpoint (1).pptx
Mental-Health-In-Older-Adults-Powerpoint (1).pptxadrianprasetio1
 
Teen depression
Teen depressionTeen depression
Teen depressionSoccerTown
 
Mental Health Senior High 2017-2018
Mental Health Senior High  2017-2018Mental Health Senior High  2017-2018
Mental Health Senior High 2017-2018CMHA-Calgary
 
Mental health research
Mental health researchMental health research
Mental health researchMegan Powell
 
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptxYOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptxCamzMak
 
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptxYOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptxCamzMak
 
Region 8 Co-Occurring Disorders (Wk 2)
Region 8 Co-Occurring Disorders (Wk 2)Region 8 Co-Occurring Disorders (Wk 2)
Region 8 Co-Occurring Disorders (Wk 2)CASATmedia
 
Transition from Adolescence to Adulthood Mental Health and Emotional Well Being
Transition from Adolescence to Adulthood Mental Health and Emotional Well BeingTransition from Adolescence to Adulthood Mental Health and Emotional Well Being
Transition from Adolescence to Adulthood Mental Health and Emotional Well Beingvinaygupta494270
 

Similar a Taking Care of Yourself as Caregiver of a Family Member With a Developmental Disability (20)

Mental Health and Coping With Stress in Middle and Late Adolescence.pdf
Mental Health and Coping With Stress in Middle and Late Adolescence.pdfMental Health and Coping With Stress in Middle and Late Adolescence.pdf
Mental Health and Coping With Stress in Middle and Late Adolescence.pdf
 
The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...
The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...
The COVID-19 Pandemic's Mental Health Impact: Identifying Your Needs and Find...
 
Mental-health-and-well-being (1).pptx
Mental-health-and-well-being (1).pptxMental-health-and-well-being (1).pptx
Mental-health-and-well-being (1).pptx
 
iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...
iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...
iCAAD Fashion Development and Understanding of Mental Health and Safe Guardin...
 
Mental Health Senior High 2017 2018
Mental Health Senior High 2017 2018Mental Health Senior High 2017 2018
Mental Health Senior High 2017 2018
 
Project care depression and anxiety
Project care depression and anxietyProject care depression and anxiety
Project care depression and anxiety
 
dealing- with- mental health stress.pptx
dealing- with- mental health stress.pptxdealing- with- mental health stress.pptx
dealing- with- mental health stress.pptx
 
Hmns10085 mod8(1)
Hmns10085 mod8(1)Hmns10085 mod8(1)
Hmns10085 mod8(1)
 
Understanding mental health and mental illness
Understanding mental health and mental illnessUnderstanding mental health and mental illness
Understanding mental health and mental illness
 
Multi Media Presentation: Problems of Well-Being and Mental Health
Multi Media Presentation: Problems of Well-Being and Mental HealthMulti Media Presentation: Problems of Well-Being and Mental Health
Multi Media Presentation: Problems of Well-Being and Mental Health
 
Youth Forum on Mental Health Awareness.pptx
Youth Forum on Mental Health Awareness.pptxYouth Forum on Mental Health Awareness.pptx
Youth Forum on Mental Health Awareness.pptx
 
world diabetes day awareness lecture note
world diabetes day awareness lecture noteworld diabetes day awareness lecture note
world diabetes day awareness lecture note
 
Mental-Health-In-Older-Adults-Powerpoint (1).pptx
Mental-Health-In-Older-Adults-Powerpoint (1).pptxMental-Health-In-Older-Adults-Powerpoint (1).pptx
Mental-Health-In-Older-Adults-Powerpoint (1).pptx
 
Teen depression
Teen depressionTeen depression
Teen depression
 
Mental Health Senior High 2017-2018
Mental Health Senior High  2017-2018Mental Health Senior High  2017-2018
Mental Health Senior High 2017-2018
 
Mental health research
Mental health researchMental health research
Mental health research
 
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptxYOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
 
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptxYOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
YOUTH MENTAL HEALTH AWARENESS COURSE SUMMARY PPT.pptx
 
Region 8 Co-Occurring Disorders (Wk 2)
Region 8 Co-Occurring Disorders (Wk 2)Region 8 Co-Occurring Disorders (Wk 2)
Region 8 Co-Occurring Disorders (Wk 2)
 
Transition from Adolescence to Adulthood Mental Health and Emotional Well Being
Transition from Adolescence to Adulthood Mental Health and Emotional Well BeingTransition from Adolescence to Adulthood Mental Health and Emotional Well Being
Transition from Adolescence to Adulthood Mental Health and Emotional Well Being
 

Más de USC UCEDD at Children's Hospital Los Angeles

Más de USC UCEDD at Children's Hospital Los Angeles (7)

Webinar: Bullying Prevention - What People with Disabilities & Families Need ...
Webinar: Bullying Prevention - What People with Disabilities & Families Need ...Webinar: Bullying Prevention - What People with Disabilities & Families Need ...
Webinar: Bullying Prevention - What People with Disabilities & Families Need ...
 
Webinar: Occupational Therapy and Sensory Processing for People with Intellec...
Webinar: Occupational Therapy and Sensory Processing for People with Intellec...Webinar: Occupational Therapy and Sensory Processing for People with Intellec...
Webinar: Occupational Therapy and Sensory Processing for People with Intellec...
 
Seminario web: Tutela para personas con discapacidades y sus familias
Seminario web: Tutela para personas con discapacidades y sus familiasSeminario web: Tutela para personas con discapacidades y sus familias
Seminario web: Tutela para personas con discapacidades y sus familias
 
Project Watch: Crime Prevention Toolkit
Project Watch: Crime Prevention ToolkitProject Watch: Crime Prevention Toolkit
Project Watch: Crime Prevention Toolkit
 
Project Vote: Voter Education Tool Kit
Project Vote: Voter Education Tool KitProject Vote: Voter Education Tool Kit
Project Vote: Voter Education Tool Kit
 
Self-Determination: A Way to Give Regional Center Clients More Choice and Con...
Self-Determination: A Way to Give Regional Center Clients More Choice and Con...Self-Determination: A Way to Give Regional Center Clients More Choice and Con...
Self-Determination: A Way to Give Regional Center Clients More Choice and Con...
 
Employment and Disability: Workforce Innovation & Opportunity Act (WIOA)
Employment and Disability: Workforce Innovation & Opportunity Act (WIOA)Employment and Disability: Workforce Innovation & Opportunity Act (WIOA)
Employment and Disability: Workforce Innovation & Opportunity Act (WIOA)
 

Último

Physiotherapy Management of Rheumatoid Arthritis
Physiotherapy Management of Rheumatoid ArthritisPhysiotherapy Management of Rheumatoid Arthritis
Physiotherapy Management of Rheumatoid ArthritisNilofarRasheed1
 
ANATOMICAL FAETURES OF BONES FOR NURSING STUDENTS .pptx
ANATOMICAL FAETURES OF BONES  FOR NURSING STUDENTS .pptxANATOMICAL FAETURES OF BONES  FOR NURSING STUDENTS .pptx
ANATOMICAL FAETURES OF BONES FOR NURSING STUDENTS .pptxWINCY THIRUMURUGAN
 
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...bkling
 
Good Laboratory Practice (GLP) in Pharma-LikeWays.pptx
Good Laboratory Practice (GLP) in Pharma-LikeWays.pptxGood Laboratory Practice (GLP) in Pharma-LikeWays.pptx
Good Laboratory Practice (GLP) in Pharma-LikeWays.pptxLikeways
 
SGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdf
SGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdfSGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdf
SGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdfHongBiThi1
 
CPR.nursingoutlook.pdf , Bsc nursing student
CPR.nursingoutlook.pdf , Bsc nursing studentCPR.nursingoutlook.pdf , Bsc nursing student
CPR.nursingoutlook.pdf , Bsc nursing studentsaileshpanda05
 
EXERCISE PERFORMANCE.pptx, Lung function
EXERCISE PERFORMANCE.pptx, Lung functionEXERCISE PERFORMANCE.pptx, Lung function
EXERCISE PERFORMANCE.pptx, Lung functionkrishnareddy157915
 
ayurvedic formulations herbal drug technologyppt
ayurvedic formulations herbal drug technologypptayurvedic formulations herbal drug technologyppt
ayurvedic formulations herbal drug technologypptPradnya Wadekar
 
Microbiology lecture presentation-1.pptx
Microbiology lecture presentation-1.pptxMicrobiology lecture presentation-1.pptx
Microbiology lecture presentation-1.pptxkitati1
 
Male Infertility Panel Discussion by Dr Sujoy Dasgupta
Male Infertility Panel Discussion by Dr Sujoy DasguptaMale Infertility Panel Discussion by Dr Sujoy Dasgupta
Male Infertility Panel Discussion by Dr Sujoy DasguptaSujoy Dasgupta
 
Using Data Visualization in Public Health Communications
Using Data Visualization in Public Health CommunicationsUsing Data Visualization in Public Health Communications
Using Data Visualization in Public Health Communicationskatiequigley33
 
Unit I herbs as raw materials, biodynamic agriculture.ppt
Unit I herbs as raw materials, biodynamic agriculture.pptUnit I herbs as raw materials, biodynamic agriculture.ppt
Unit I herbs as raw materials, biodynamic agriculture.pptPradnya Wadekar
 
How to cure cirrhosis and chronic hepatitis naturally
How to cure cirrhosis and chronic hepatitis naturallyHow to cure cirrhosis and chronic hepatitis naturally
How to cure cirrhosis and chronic hepatitis naturallyZurück zum Ursprung
 
Different drug regularity bodies in different countries.
Different drug regularity bodies in different countries.Different drug regularity bodies in different countries.
Different drug regularity bodies in different countries.kishan singh tomar
 
blood bank management system project report
blood bank management system project reportblood bank management system project report
blood bank management system project reportNARMADAPETROLEUMGAS
 
Role of Soap based and synthetic or syndets bar
Role of  Soap based and synthetic or syndets barRole of  Soap based and synthetic or syndets bar
Role of Soap based and synthetic or syndets barmohitRahangdale
 
CONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdf
CONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdfCONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdf
CONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdfDolisha Warbi
 
Red Blood Cells_anemia & polycythemia.pdf
Red Blood Cells_anemia & polycythemia.pdfRed Blood Cells_anemia & polycythemia.pdf
Red Blood Cells_anemia & polycythemia.pdfMedicoseAcademics
 
Generative AI in Health Care a scoping review and a persoanl experience.
Generative AI in Health Care a scoping review and a persoanl experience.Generative AI in Health Care a scoping review and a persoanl experience.
Generative AI in Health Care a scoping review and a persoanl experience.Vaikunthan Rajaratnam
 
Bulimia nervosa ( Eating Disorders) Mental Health Nursing.
Bulimia nervosa ( Eating Disorders) Mental Health Nursing.Bulimia nervosa ( Eating Disorders) Mental Health Nursing.
Bulimia nervosa ( Eating Disorders) Mental Health Nursing.aarjukhadka22
 

Último (20)

Physiotherapy Management of Rheumatoid Arthritis
Physiotherapy Management of Rheumatoid ArthritisPhysiotherapy Management of Rheumatoid Arthritis
Physiotherapy Management of Rheumatoid Arthritis
 
ANATOMICAL FAETURES OF BONES FOR NURSING STUDENTS .pptx
ANATOMICAL FAETURES OF BONES  FOR NURSING STUDENTS .pptxANATOMICAL FAETURES OF BONES  FOR NURSING STUDENTS .pptx
ANATOMICAL FAETURES OF BONES FOR NURSING STUDENTS .pptx
 
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
Moving Forward After Uterine Cancer Treatment: Surveillance Strategies, Testi...
 
Good Laboratory Practice (GLP) in Pharma-LikeWays.pptx
Good Laboratory Practice (GLP) in Pharma-LikeWays.pptxGood Laboratory Practice (GLP) in Pharma-LikeWays.pptx
Good Laboratory Practice (GLP) in Pharma-LikeWays.pptx
 
SGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdf
SGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdfSGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdf
SGK RỐI LOẠN TOAN KIỀM ĐHYHN RẤT HAY VÀ ĐẶC SẮC.pdf
 
CPR.nursingoutlook.pdf , Bsc nursing student
CPR.nursingoutlook.pdf , Bsc nursing studentCPR.nursingoutlook.pdf , Bsc nursing student
CPR.nursingoutlook.pdf , Bsc nursing student
 
EXERCISE PERFORMANCE.pptx, Lung function
EXERCISE PERFORMANCE.pptx, Lung functionEXERCISE PERFORMANCE.pptx, Lung function
EXERCISE PERFORMANCE.pptx, Lung function
 
ayurvedic formulations herbal drug technologyppt
ayurvedic formulations herbal drug technologypptayurvedic formulations herbal drug technologyppt
ayurvedic formulations herbal drug technologyppt
 
Microbiology lecture presentation-1.pptx
Microbiology lecture presentation-1.pptxMicrobiology lecture presentation-1.pptx
Microbiology lecture presentation-1.pptx
 
Male Infertility Panel Discussion by Dr Sujoy Dasgupta
Male Infertility Panel Discussion by Dr Sujoy DasguptaMale Infertility Panel Discussion by Dr Sujoy Dasgupta
Male Infertility Panel Discussion by Dr Sujoy Dasgupta
 
Using Data Visualization in Public Health Communications
Using Data Visualization in Public Health CommunicationsUsing Data Visualization in Public Health Communications
Using Data Visualization in Public Health Communications
 
Unit I herbs as raw materials, biodynamic agriculture.ppt
Unit I herbs as raw materials, biodynamic agriculture.pptUnit I herbs as raw materials, biodynamic agriculture.ppt
Unit I herbs as raw materials, biodynamic agriculture.ppt
 
How to cure cirrhosis and chronic hepatitis naturally
How to cure cirrhosis and chronic hepatitis naturallyHow to cure cirrhosis and chronic hepatitis naturally
How to cure cirrhosis and chronic hepatitis naturally
 
Different drug regularity bodies in different countries.
Different drug regularity bodies in different countries.Different drug regularity bodies in different countries.
Different drug regularity bodies in different countries.
 
blood bank management system project report
blood bank management system project reportblood bank management system project report
blood bank management system project report
 
Role of Soap based and synthetic or syndets bar
Role of  Soap based and synthetic or syndets barRole of  Soap based and synthetic or syndets bar
Role of Soap based and synthetic or syndets bar
 
CONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdf
CONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdfCONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdf
CONNECTIVE TISSUE (ANATOMY AND PHYSIOLOGY).pdf
 
Red Blood Cells_anemia & polycythemia.pdf
Red Blood Cells_anemia & polycythemia.pdfRed Blood Cells_anemia & polycythemia.pdf
Red Blood Cells_anemia & polycythemia.pdf
 
Generative AI in Health Care a scoping review and a persoanl experience.
Generative AI in Health Care a scoping review and a persoanl experience.Generative AI in Health Care a scoping review and a persoanl experience.
Generative AI in Health Care a scoping review and a persoanl experience.
 
Bulimia nervosa ( Eating Disorders) Mental Health Nursing.
Bulimia nervosa ( Eating Disorders) Mental Health Nursing.Bulimia nervosa ( Eating Disorders) Mental Health Nursing.
Bulimia nervosa ( Eating Disorders) Mental Health Nursing.
 

Taking Care of Yourself as Caregiver of a Family Member With a Developmental Disability

  • 1. 1 Welcome to the USC UCEDD Webinar Series for Individuals with Disabilities & Parents funded by grant #90DD0695 from the Administration on Intellectual and Developmental Disabilities (AIDD) Administration on Community Living July 28, 2016
  • 2. 2 Your Moderator 2 Susan Kanegawa USC UCEDD Family Support Coordinator skanegawa@chla.usc.edu www.uscucedd.org The USC University Center of Excellence in Developmental Disabilities at Children’s Hospital Los Angeles (USC UCEDD) is one of 68 UCEDDs funded to promote systemic change, advocacy, and capacity building in states on behalf of individuals with, or at risk for, developmental, behavioral and/or special health care needs, and their families. The USC UCEDD Webinar series is designed to educate the community about current policy issues which impact the lives of people we serve and their families. Our primary audience is individuals with special needs and their families. At this time, our webinars are in English only. We are exploring methods to make this series available in other languages in the future.
  • 3. 3 Structure and Logistics 3 Take notes Type your questions Download slides Watch and Share Take Survey During the Webinar After the Webinar Give your opinion
  • 4. 4 Poll: Can you hear Susan and Sandy? •4 Let us know in the chat box if we need to speak louder.
  • 5. 5•5 Sandy Magaña, PhD Professor of Disability and Human Development at the University of Illinois at Chicago July 28, 2016 Taking Care of Yourself as Caregiver of a family member with a developmental disability
  • 6. 6 About Dr. Sandy Magaña Dr. Magaña is a Professor of Disability and Human Development at the University of Illinois at Chicago, and the Director of the Family Support Research and Training Center. Email: maganas@uic.edu Website: Family Support Research and Training Center at the University of Illinois at Chicago http://fsrtc.ahslabs.uic.edu/ Dr. Magaña’s research focus is on the cultural context of families who care for people with disabilities and mental illness, and the experiences of parents who have disabilities. Her concentration is on health disparities of minority caregivers, and diagnosis and treatment disparities for Latino and Black children with autism spectrum disorder, and on interventions to reduce health and service disparities.
  • 7. The Family Support Research and Training Center (FSRTC) is a collaboration of researchers and organizations whose focus is on gathering and generating knowledge about the needs and experiences of families who provide support to children and adults with disabilities. The FRSRTC aims to bridge resources and information across diverse groups to develop policies and practices related to family support. 7 The FSRTC is housed at the University of Illinois at Chicago’s Institute on Disability and Human Development (IDHD), which is the University Center for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) for the State of Illinois.
  • 8. Importance of caring for yourself Signs of stress and depression Including others in caregiving Setting health goals for yourself “By Caring for Myself” Program Overview of the Webinar 8
  • 9. 9 Importance of caring for yourself Signs of stress and depression Including others in caregiving Setting health goals for yourself “By Caring for Myself” Program Recognizing the importance of caring for yourself as a caregiver
  • 10. Story about Joanna • Joanna is married, has a 4 year old son with autism, and two typically- developing daughters who are 7 and 10 years old • Listen to the story about Joanna’s stressful situation • Let’s think about the ways that Joanna’s situation may be unique, and ways that it is similar to other parents’ experiences – Joanna’s son is young and required speech therapy – Parents of adolescents or adults with I/D.D. may face other unique challenges • We will revisit this story when discussing ways to reduce stress 10
  • 11. Research on family caregivers of children and adults with IDD • Research shows that family caregivers compared to non-caregivers – face higher rates of depressive symptoms—this was found across several studies – Have higher rates of obesity, high blood pressure, and arthritis (based on a study in Illinois) – Poorer self-rated health status • Research based on a national data set shows that African American and Latino caregivers of children with I/D.D., compared to their non-caregiving counterparts – Face higher rates of depressive symptoms, heart problems, arthritis, and diabetes – Are less likely to see a doctor for their own health care 11
  • 12. By caring for myself, I can better care for my family • We developed a health intervention focused specifically on caregivers’ health. I will share with you two of the sessions we cover in this intervention about recognizing and reducing stress • In working with caregivers, we find that many view taking care of their child or adult with I/D.D. as their primary responsibility • As in Joanna’s story, this can include many tasks and roles, such as taking him or her to the doctor or for activities, managing his or her schedule, helping with and teaching self-help skills, and managing challenging behaviors • Research shows that managing challenging behaviors is one of the strongest factors in high levels of stress among I/D.D. caregivers 12
  • 13. • As a result of the caregiving responsibilities, caregivers often do not: – Take free time to relax – Find time to do things they like to do – Go out with friends and other loved ones • They often feel it is selfish to do these things, but consider the “airplane” example: – You may have heard the flight attendant say that in case of emergency, put the oxygen mask on yourself first and then on your child or others – Why do they make this recommendation? • Think about what you do to take care of yourself on a regular basis 13
  • 14. 14 Importance of caring for yourself Signs of stress and depression Including others in caregiving Setting health goals for yourself “By Caring for Myself” Program Recognizing signs of stress and depression
  • 15. Recognizing signs of stress • Stress can result from any situation or thought that makes you feel frustrated, angry, or anxious. What is stressful to one person may not be stressful to another • The body has a natural response to stress and releases stress hormones to protect you • Your body reacts when you are in danger, warning you to get out of harm’s way— for example, a car coming at you when you are crossing a street • Your body does not differentiate the different types of stressful situations • A pile-up of stressful situations can cause health problems 15
  • 16. • When your body activates the stress reflex: – Your arteries contract, and this reduces the blood flow to the heart – Your blood pressure rises – Your blood becomes thicker, increasing the likelihood of developing a blood clot • Too much stress can: – Cause heart rate problems, heart attacks or other health problems – Weaken the immune system, increasing the likelihood of colds and infections – Trigger asthma attacks, arthritis, and intestinal problems – Affect the way you manage everything in your life – Contribute to anxiety, depression and anger 16
  • 17. Ways to reduce stress • Let’s think back to Joanna’s story. What are ways to help her reduce stress in her situation? – One key way would be to involve other family members in the responsibilities so she isn’t doing it all herself: • She could ask her husband to help her with the housework • The children could help by picking up their things and washing dishes • Her husband could help with the son at night, or with the older children in the morning, or with preparing the lunches – Joanna could: • Leave the housework for the next day • Try to schedule appointments at a later hour 17
  • 18. • No one can avoid all stressful situations, but we can learn to manage stress – Use respite services if you have them—to take time to do things you want to do – Get professional help for specific needs such as challenging behaviors – Maintain a healthy lifestyle including physical activity, healthy diet and adequate sleep – Avoid smoking, too much alcohol or substance abuse – Don’t be afraid to ask for support! – Engage in a mindfulness activity such as a breathing exercise, yoga, or meditation 18
  • 19. Depression • Too much stress can lead to depression; however it is not the only contributing factor • Depression may be described as feeling sad, blue, unhappy, miserable or down in the dumps • Most of us feel this way at one time or another, but it is usually short-lived • True clinical depression is a mood disorder in which feelings of sadness, loss, anger or frustration interfere with everyday life for extended periods of time • Clinical depression requires treatment—it is important to seek out mental health care 19
  • 20. There are different types of depressive disorders • Major Depressive Disorder: the symptoms are severe and interfere with your ability to work, eat, sleep, etc. A major depressive episode may occur once in a lifetime, but a person can have various episodes • Dysthymic Disorder: the symptoms of depression last a long time (2 years or more) but are less severe than in major depressive disorder • Postpartum Disorder: Generally, it is a major depressive episode within the first month after giving birth • Seasonal Depression: This type of depression occurs during the winter months, when the hours of sunlight decrease, and generally disappears during spring 20
  • 21. Signs & symptoms of depression • Feeling depressed or down almost every day • Losing interest or not being able to enjoy the things you used to enjoy • Changes in appetite and/or weight (eating either less or more than you used to) • Sleeping problems (difficulty falling asleep, waking up often, waking up very early and unable to fall asleep again, sleeping too much) • Changes in speed of movement (either being too restless or moving too slowly) • Feeling tired all of the time • Feeling undervalued or guilty • Problems thinking, concentrating, or making decisions • Having thoughts of death or of hurting oneself 21
  • 22. Seeking help • If you have 5 or more of the symptoms described, it is important to see a health care professional • Depending on your health insurance or resources you may: – First see a primary physician who can treat you or refer you to a mental health professional – Contact a mental health agency such as your County Mental Health – Go to a government-funded health care clinic to see a medical provider who can treat or refer 22
  • 23. 23 Importance of caring for yourself Signs of stress and depression Including others in caregiving Setting health goals for yourself “By Caring for Myself” Program Including others in caregiving
  • 24. Including others • Remember Joanna’s situation--she needed to include her family members in daily tasks • Including others can go beyond your immediate family • Let’s think about your context: – Make a list of the top three tasks or problems that you need help with – Next let’s think of who in your life provides some sort of support to you (we will explore this with the ecomap) – Last, think about who you could ask for help with the above tasks or problems 24
  • 26. 26 Importance of caring for yourself Signs of stress and depression Including others in caregiving Setting health goals for yourself “By Caring for Myself” Program Setting health goals for yourself
  • 27. 27 Name __________________________________ Date _____________ Healthy Habits Goal Contract Your behaviors help you to achieve good health. It is important to have clear goals for yourself. Set one goal now and make it specific, measurable, easy and important for you. After you have achieved one goal, move on to another goal. Exercise ● Healthy Eating ● Relaxation ● Health ● Asking for Checkups Help Important Area to Change: _____________________________________ Specific Goal: ________________________________________________ Action Plan: _________________________________________________ Obstacles: ____________________________________________________ Solutions: ____________________________________________________
  • 28. 28 Importance of caring for yourself Signs of stress and depression Including others in caregiving Setting health goals for yourself “By Caring for Myself” Program “By Caring for Myself” Program
  • 29. “By Caring for Myself” Program • Some of what we discussed was part of a health intervention we designed for Latina caregivers • The full title is “By Caring for Myself, I Can Care Better for My Family” – Because Latina mothers often feel caring for oneself is selfish, it was important to include the family in the title • We use promotoras de salud or community health workers to deliver the intervention through either home visits or group sessions – The promotoras are mothers of children with developmental disabilities 29
  • 30. Promotora *Mother of child with I/D.D. Share common identity with participant Health educator in Latino community Respected and visible Bilingual: Communication Bridge Understand host community * Unique to our study
  • 31. • Session One: Taking care of oneself & pre-test • Session Two: Health care • Session Three: Well-being activity • Session Four: Nutrition • Session Five: Exercise • Session Six: Stress & depression • Session Seven: Including others • Session Eight: How to sustain growth & post-test “By Caring for Myself” Curriculum Eight-week health education program
  • 32. Using “By Caring for Myself” If you are representing an agency that would like to use the program, we can do a “train the trainer” program. If interested, contact me: Sandy Magaña, UIC Department of Disability and Human Development (312) 355-4537 maganas@uic.edu 32
  • 33. Resources • Free booklets in English and Spanish about depression: https://www.nimh.nih.gov/health/publications/depression-listing.shtml • Information on stress: https://www.nimh.nih.gov/health/publications/stress/index.shtml • Los Angeles County Department of Mental Health http://dmh.lacounty.gov/wps/portal/dmh 33
  • 34. 34 Poll: Do you now have a better understanding about taking yourself as a caregiver?
  • 35. 35 Ask Us a Question Please type your questions (Top-left corner of your MeetingBurner screen)
  • 36. 36 Thank you for attending and interacting!! You have access to webinar slides, handouts and video recording. Don’t leave yet!! Please take 3 minutes to answer a survey about your experience with this webinar. UCEDD SlideShare Page UCEDD YouTube Playlist Webinar Evaluation Survey